Previous Thread
Next Thread
Print Thread
Page 3 of 3 1 2 3
Joined: Jul 2004
Posts: 7
Member
Offline
Member

Joined: Jul 2004
Posts: 7
Wow thank you everyone for your response, this has been a great help for me.
Tomorrow we get the PET scan done which will tell us if surgery is a possibility. Ed you mentioned MD Anderson and how they reviewed everything within 24 hours, whom exactly did you contact, I only found the

Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
Swati,

I went to the New Patient section, filled out the self referral form and they called me the next day. I am not sure of exactly how it progressed but I remember them giving me a phone number after I faxed path reports and scan results and I was instructed to have my doctor call the doctor there. I don't know what I did with my notes but it was little effort for me to get it all done. Here is a link where I started:
http://www.mdanderson.org/Departments/headandneck/dIndex.cfm?pn=DC30E167-7545-11D4-AEC300508BDCCE3A

I hope this helps.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Page 3 of 3 1 2 3

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5