#43448 06-18-2004 08:41 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All, I am starting on Chemo on Monday morning. It's a two hour procedure once a week for three weeks. A week off followed by another three weeks. Will have another scan after that to see if it;s doing any good. Wish me luck Friends.!!!! The drugs they will be using are 1) Carboplatin 2) Taxol A reminder to anyone who can't attend the reunion in September to please Enail or mail me a picture of you and or your family, They will be posted at the dinner on Saturdat night. I have already received about ten photos so far/ If your family is included in the picture please include their names/ Thank You, Danny Boy Email address- [email protected]Mailing address: Dan Bogan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#43449 06-18-2004 08:49 AM | Joined: Sep 2003 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 30 | Hi Dan,
I wish you tons of luck and I will be praying that the cancer just disappears.
Sharon
Right Radical Neck Disection 2/02, 7 wks Rad. rgt side 04/03, 15% of tongue removed 08/03, Lung Met 05/04, lung surgery removed 8 nodules and 4 lymph nodes in chest all SCC
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#43450 06-18-2004 09:05 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny Boy,
Thanks for the update and I will have those prayer bones aworking! I pray for God to wrap his healing hands around you and give those treating you the knowledge and guidance they need to work His miracle in you!
YBIC,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#43451 06-18-2004 09:22 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Hey Dan. I had good luck with that stuff and I'm wishing the same luck for you. With the premed's they'll hang, I'm expecting that you'll just fine on the chemo. Say goodbye to your hair, though.
I'm not a religious person, so I won't make religious noises. But I'm wishing you the very best luck with this.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#43452 06-18-2004 10:04 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Danny,
Here's hoping that this cocktail works for you. Glad you are starting treatment. Were they unable to find a clinical trial for you or are they still looking? Best of luck with this.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#43453 06-18-2004 11:13 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Good luck Dan, I believe a positive attitude helps with treatment for this disease and you certainly have that in bucketloads! Love from Helen 
RHTonsil SCC Stage IV tx completed May 03
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#43454 06-18-2004 02:42 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Dan,
Glad to hear you are on your way with more treatment...by the way, Dan had the same drugs and didn't lose his hair...just a little of it fell out all over. You are always in my daily prayers for healing, and peace for you and your family during these most difficult of days.
God bless and take care,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#43455 06-18-2004 04:25 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Danny,
On Monday show everybody how it's done.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#43456 06-19-2004 04:42 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Danny Boy, You are in my thoughts and prayers, God Bless You!!! Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#43457 06-19-2004 07:58 AM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Danny,
Good luck on Monday and here's to your new chemo cocktail! Keep up the fighting spirit. I'll be thinking and praying for you.
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#43458 06-19-2004 09:06 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Danny
You know I'm with you in spirit... So keep the faith brov...
sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#43459 06-19-2004 09:21 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | YEA Dan! You are my hero! And maybe a bald one? I think bald is sexy......course I was alive for Yul Brynner and Kojak! Love you and God bless Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#43460 06-19-2004 11:01 AM | Joined: Jan 2003 Posts: 95 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2003 Posts: 95 | You go Dan'
My husband had the same cocktail and it did wonders he shaved his head to avoid the fall out .And for the first time in twenty years I didn't have to look at that one peice comb over deal. I will also tell you he grew back much more than he had . Now the wierd thing is he got hooked on Rod Stuart after he had his lobe out and played that Time after time songbook thing for three days and wants a hairdo like him.Whatever works. All hair aside I have a feeling this will work for you and you will be typing on this board with your many words of wisdom and kindness for many more years.
Luv Ya
Diane | | |
#43461 06-19-2004 11:11 AM | Joined: May 2004 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2004 Posts: 31 | Danny,
I wish you all the luck! I pray everything works out well for you and your family.
Kimberly -friend to paitent
mom to 3 boys
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#43462 06-19-2004 05:13 PM | Joined: Apr 2003 Posts: 13 Member | | Member
Joined: Apr 2003 Posts: 13 | Dan,
We are so glad you found and are going to get more treatment. We hope this will do the trick for you. You are such a positive person and an insperation for all of us. Good luck on Monday.
Shirley | | |
#43463 06-20-2004 01:37 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Just wanted to add my good wishes Dan..my hubby says to tell you. "when your Hair starts to hurt..just go ahead and shave it," thats the start of the falling out process. Besides which I am sure you will be quite the bald cutie pie.
take care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#43464 06-21-2004 10:51 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Danny,
I see you are on the board now. How did treatment go today? Hope it didn't make you too sick.
Sorry to read about your brother but here's praying it is something else.
Will you take that vacation when they give you your week off or do you have to get the scans and the results that week?
Tkae care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#43465 06-21-2004 12:43 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Thanks to all who posted offering support and prayers. It sure is a pick me up to read such postings.
Please know there is no way I can express my feelings in a posting. I'd need Gary here to help me with that one!!
I hope to meet many of you in Las Vages in Sept. If you can't make it please email me a photo of you and/or your family to be posted at the dinner Sat night.
Thanks again, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#43466 06-21-2004 05:41 PM | Joined: Aug 2003 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2003 Posts: 71 | Danny-
I'm sure with all the prayers you and your doctors are getting God will send healing powers your way. Don, my husband, received the same chemo mix...the nausea was the worst part, but hang in there...it does go away. Most of his hair fell out , but not all...a "Marine" cut worked out just fine.
You are such a blessing to everyone here on the OCF! I look forward to meeting you in Las Vegas.
Keep up the good spirits...it helps to make it through. One of the best things about chemo was we met the most amazing people...that was a blessing in and of itself. I am sure you will be a blessing to those who are fortunate enough to be in the room with you.
Lorie
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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#43467 06-21-2004 08:59 PM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Dan,
I hope and pray that the chemo that they have chosen is effective and acts as a seek and destroy missile on your cancer. I didn't start to loose my hair with that combo until day 10-14. Like someone else said, when your hair feels strange that is the falling out process. I shaved mine at that point to avoid having t clean it up too.
My prayers are with you and your family. How is everyone holding up?
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#43468 06-21-2004 08:59 PM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Dan,
I hope and pray that the chemo that they have chosen is effective and acts as a seek and destroy missile on your cancer. I didn't start to loose my hair with that combo until day 10-14. Like someone else said, when your hair feels strange that is the falling out process. I shaved mine at that point to avoid having t clean it up too.
My prayers are with you and your family. How is everyone holding up?
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#43469 06-22-2004 10:19 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Danny: Sorry I didn't see this before. Been busy and not had a chance to get to the whole board. Am very pleased to see you are starting a new treatment. Hopefully it will do its job as some others mentioned and not cause too much discomfort. As always, you'll be in my prayers. The Lord works in mysterious ways and we don't always know the what and why of His work. Have faith that He has your best interests at heart and keep up your positive attitude.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#43470 07-02-2004 08:38 AM | Joined: May 2004 Posts: 34 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2004 Posts: 34 | Dan - how is it going? How are you feeling now that you have started chemo?
Caregiver/twin sister to Cathy diagnosed with tongue cancer Feb. 2004/partial glossectomy and neck dissection Mar 2004/recurrence may 2004
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