#41555 07-28-2007 09:58 AM | Joined: Aug 2006 Posts: 15 Member | OP  Member
Joined: Aug 2006 Posts: 15 | I finished treatment 6 months ago for SCC under the tongue Stage III. The ENT doctor says there is no sign of cancer. I had the peg tube removed three weeks ago and am eating. Here is the problem. I have developed sores on the side of my tongue and an ulcer on the right side of my
jaw. It it so painful that I am taking two 10 mg. Percocet every four hours and this is not totally stopping the pain. Can anyone tell me if
they are having the same problem and any suggestions on what I can do to alleviate the pain especially when I eat. The ENT doctor is sending me to a pain specialist next week and I also want to know what to expect. Please let me
know what the pain specialist will do.
BOT SCC Stage III DX August 14, 2006. Radiation and Chemo completed January, 2007. No surgery. "When you have exhausted all possibilities remember this-----You Haven't"
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#41556 07-29-2007 10:38 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I get sores on my tongue from time to time still--2 years out from radiation. The tissue is just very sensitive and it rubs against my teeth at night when it is really dry and that alone does it sometimes. I usually take tylenol or aleve and it kills the pain and I try to eat things that sooth and coat my tongue (eg, stuff with milk in it) when it's a problem. I haven't been to a pain specialist so I can't say what they'll do to help you. I hope you get some pain relief from it!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#41557 07-29-2007 02:39 PM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | I had pain when I ate and found out it was from dry mouth which caused Thrush. Thrush is something we all need to watch out for. That will account for SOME of the sores on the tongue. It did for me.
The Medicine I use for it is liquid Nystatin. I thought I would not get thrush again after I was finished with treatment. Well I was wrong.
I hope this might be of some help to you. Ask your Dr. for help in this area.
Take care,
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#41558 07-30-2007 01:30 AM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2005 Posts: 624 | You do need to see the doctor as this could be thrush or it could be mouth sores (as Nelie noted) from rubbng your irritated toungue against rough spots on your teeth or from another cause (like biting the sides of your tongue as it -- the tongue-- could still be inflamed and a bit larger than normal).
If the former, the best treatment is an oral med, Diflucan, sometimes a Nystatin rinse is also needed. If the sores are caused by trauma, various preparations such as Ulcer-ease, GelClair (or the OTC form, Rincinol) or simple salt/soda rinses will help.
Sometimes ulcers resulting from radiation can be slow to heal due to tissue damage, and they may well need more proactive treatment -- your oncologist should be concerned about this as well.
Gail
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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#41559 07-30-2007 07:31 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | I got mouth sores for about 8 months after. My doc gave me Diflucan and it went away every time. Have to admit it was getting pretyy bothersome though. I know what you are going through. You just want this to be over. Talk soon  -robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#41560 08-02-2007 02:23 AM | Joined: Jul 2007 Posts: 45 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2007 Posts: 45 | Hi,
I get ulcers ALL the time! I find mine are flared up if i eat anything too acidic, such as tomatoes/fruit etc. It's my own fault for pushing my luck as my mouth lining is still so sensitive!
And as others have said, my mouth also flares up with thrush persistantly. But i've found drinking a probiotic drink every day keeps it at bay for me!
Hope it feels better soon.
All the best,
Michelle
Undifferentiated Nasopharyngeal Ca. T3N1M0 stage: IIb. diagnosed: June 2006. 6cycles of high dose chemo (Cisplatin & 5FU). 6 & half weeks (33sessions) radical R/T
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#41561 08-02-2007 02:42 AM | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Michelle,
What is a probiotic drink?
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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#41562 08-02-2007 02:50 AM | Joined: Jul 2007 Posts: 45 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2007 Posts: 45 | Pro biotic drinks are little Yoghurty drinks that have live cultures in it. Uk brands are Actimel, Yakult & Muller. I know for a FACT they work for me as i ran out last week and within 3 days my thrush was back with avengence! & within 3 days of being back on them my thrush is finally subsiding again. There's also a suppliment called Threelac that helps. But the drinks are far cheaper! It's what works for you i guess!
Undifferentiated Nasopharyngeal Ca. T3N1M0 stage: IIb. diagnosed: June 2006. 6cycles of high dose chemo (Cisplatin & 5FU). 6 & half weeks (33sessions) radical R/T
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#41563 08-02-2007 10:37 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Don't know if this is available in UK, but Dannon makes a yogurt called Activia that has probiotics in it. They recommend eating one a day for 14 days to get your stomach bacteria back to normal. Wish I had known about probiotics curing thrush. Besides Ensure Plus, yogurt was one of the few things I could eat when I had radiation and I had rampant thrush. Anyway, most flavors were good. I think peach was my least favorite.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#41564 08-02-2007 12:59 PM | Joined: Aug 2006 Posts: 15 Member | | OP Member
Joined: Aug 2006 Posts: 15 | Thanks to all for your responses. My mouth sores
are on the right side of my tongue near the very
bottom of my mouth. Can someone tell me if Diflucan is an over the counter medicine or if it
is a prescription drug. Is it an antibiotic?
Thanks in advance for your response.
BOT SCC Stage III DX August 14, 2006. Radiation and Chemo completed January, 2007. No surgery. "When you have exhausted all possibilities remember this-----You Haven't"
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