#38889 08-03-2005 01:35 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Michael,
My oncologist has continued on as my PCP ever since my tongue cancer days 16 years ago. (The doctor who had previously been my GP was one of several MD's who had told me the ulcer on my tongue was nothing serious.) I see my oncologist at least twice a year for routine follow-ups, and I call him if anything else turns up that needs immediate attention. He typically provides referrals to any other specialists I may need and he almost always fits me into his schedule within a day or two. He has been very good about maintaining a complete file not only for his own work but also with reports from the various specialists he has referred me to (even those that are totally unrelated to my cancer experience), so I'm sure he has the best repository of any and all tests I've had during and since my treatment.
I hope you'll be able to find someone local who can fill this role for you and be attentive to whatever you will need for followup care.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#38890 08-03-2005 06:50 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Well Micahel I still have 4 to go.  The darn table would not work today so we all sat around an hour or two and then we all went home. Oh well I am aware the nasty affects will continue into the second week after treatment is finished so I may as well continue to take it one day at a time. Naw. I never stopped. They wanted to because of the condition of my skin but I said nope just carry on to the end. I will deal. Then they gave me some triple antibiotic cream and between tha, the Vigilon pads and the Biafine it gets better everyday. Have a great day! Barb~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#38891 08-03-2005 11:27 AM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | You are such a trooper Barb!!!
We'll have to celebrate when we're both done with the tx.
:-)
- Michael
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#38892 08-07-2005 10:05 AM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | Got everything recommended above, TSH, Kidney Function, Hematology, Billirubin, etc.
Most results are in, and all looks "Normal" except for:
"INR" is 1.1 out of a normal range of 2.0 to 3.5
"Co2" is 32 out of normal of 22 to 30/
Mono was negative (just for fun!), and waiting on Hep screen results from 3rd party lab.
What is INR..?
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#38893 08-07-2005 11:59 AM | Joined: Apr 2005 Posts: 68 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 68 | Michaelii
Did you have a PT and INR drawn?
PT is prthrombin time- the time it takes for a clot to form in your blood
INR is a calculation to adjust for different lab values (every lab will get a different result when testing-they all have different norms)
Mucoepidermoid carcinoma-intermediate grade. Removed 3/05. Additional surgery to get clean margins and selective neck dissection 4/05. 30 lymph nodes removed. All clear!!
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