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#38863 07-25-2005 06:40 AM
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Barb Offline OP
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Have you used this stuff? My neck is a mess. This is some kind of cortisone cream to help the itch. I just got the script today and it seems to be working no longer than the over the counter stuff. frown

My pharmacist said any type of "cream" will dry out your skin. Ever heard of that one?

God bless,
Barb~


[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
#38864 07-25-2005 09:32 AM
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Maybe someone else can add to this or u can ask at radiation tommorow. I remember toward the end of radiation my mom was complaining of the same thing. I do remember she was using some sort of cream, Aquafor i Think she had some sort of blue gel pads that were refrigerated and then placed on her neck. That she could hardly stand because it was too cold. But she used washclothes instead and laid on the couch and napped with them on. The rad nurses reccomened this, but i cant remember why. maybe someone else has some good ideas.


Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
#38865 07-25-2005 09:50 AM
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Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
#38866 07-25-2005 11:29 AM
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Barb,

My dermatologist prescribed fluocinonide cream for me a few years ago when I had an annoying dermatitis problem on my hands. It seemed to work reasonably well on that -- however, I'm quite sure the condition I was dealing with was nowhere near the level of severity of radiation burns, so I don't know how effective it would be for the skin on your neck (unless maybe it comes in different strengths).

Cathy


Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
#38867 07-25-2005 12:19 PM
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Barb-Aquaphor helped relieve the burning and itching on John's neck also.Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
#38868 07-25-2005 02:27 PM
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Barb Offline OP
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Well I am using the Biafine cream and the Fluoconide too but yuck. Tonight I just mixed some milk with the Biafine and it seems to be working fine. Milk is an excellent moisturizer. My pharmacist said today that any type of "creams" will dry your skin unless it has oil in it and that an ointment is better to keep in the moisture. I am asking my rad nurse about this tomorrow.This is barbaric to have to deal with this. UGH!

I will check that link.
Thanks all and God bless,
Barb~


[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
#38869 07-26-2005 04:37 AM
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Barb Offline OP
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Today the nurse gave me two sheets of Vigilon. Oh man she peeled the plastic off one side and slapped that on my neck and though the cold was uncomfortable for a minute what a relief it was. It was too big so she said cut it in half when I got home. Its chilling in the fridge right now. I am so happy. I wonder how long each one lasts before they dry up. Anyone know off hand?
Thank you and God bless you,
Barb~


[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
#38870 07-28-2005 06:17 AM
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Barb, I'm sorry you are having to go through this ordeal!

Be strong, you are an inspiration to me, and I'm right behind you.

One thing I might mention, is that I've noticed some talk about Aloe Vera on here and other boards.

I'm drinking it right now, and plan to make a mouth rinse with it, and some Vitamin E for topical swish only.

It might work for external use too?

Ask around...Does your CCC have an Integrative Medicine dept that can help with alternatives such as accupuncture, herbal remedies, etc..?

You're so brave...keep up the fight!!!!!!!

Hugs,
- Michael


Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
#38871 07-28-2005 08:46 AM
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Before any of you start home remedies for things clear it with your doctor first! Vitamin E has recently had studies done to suggest it can cause cancer or exacerbate it.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#38872 07-28-2005 12:34 PM
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Barb Offline OP
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Well the Fluoconide is out since it set me on fire and not for the Lord. They gave me a whole brown bag full of the Vigilon gel pads. Enough to last me for a month so I am sticking with that.
Vit.E is not a hot idea Michael. They are talking bout it everywhere and how it may promote rather than help cancer. Be careful.

Blessings,
Barb~


[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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