#38746 06-29-2005 03:47 PM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | My dang throat is already getting itchy and irritated inside. I don't want to ask for anything yet so what can I do for at least another week? I am trying the salt/Bk.soda/ water mix but its not doing a thing. Iced water isn't and neither is hot coffee. Next week they are putting me on everything at room temperature. This is torture. I am calling the Pres. LOL
I need advice. I love you and thanx.
Barbara~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#38747 06-29-2005 04:17 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Barb, I think the Pres. likes cheeseburgers and dill pickles, he won't be much help. Iced tea really helps John's throat ,and Danny Boy's ice cream smoothies helped until tx #20 or so. I'm sure you will get lots more suggestions too. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#38748 06-29-2005 04:22 PM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | I need an ice cream smoothie IV. Then I can just get fat, sleep all the time and only wake up for another ray of radshine. I gotta feeling I am gonna be a major whiner. Are y'all ready for it?
Love and hugglets,
Barbara~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#38749 06-29-2005 04:56 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Whine on-whine on- Harvest moon up in the sky - that is a great song [and I've had too much wine] Barb, I think this is a very safe place to whine. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#38750 06-30-2005 06:43 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Hahahahaahhahaha! Amy I am so tired today but girl you made me laugh my socks off. hahahahahahaha
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#38751 07-10-2005 02:35 AM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | Barb...this is going to sound pedantic, but have you tried Chloraseptic..? I don't know if your Doc will allow it, but I am using post-surgery to the tonsil and it helps w/ about 30-40% of the discomfort, plus it's fairly benign. Just something to think about...I also gargle with Hydrogen Peroxide, but that might hurt too much based on your current pain..? We are with you, whine all you want!! (It'll be my turn soon enough 
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#38752 07-10-2005 03:59 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Thanks Michael. Thing is gargle doesn't help the pain since its in my voice box which way down and inside there. I am on Miles solution which is cortisone, Tetracyclin which I can't spell and some other stuff I can't spell. LOL I am also on Lortab Elixer which is Hydrocodone and noting works so good yet.
I will see the doc Monday and he will no doubt try a new something.
May Gods bless,
Barbara~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#38753 07-10-2005 11:01 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Barb, I don't have any good suggestions since a gargle won't reach it. Maybe you just need a stronger pain med. than the Lortab? I was told there is no such thing as whining here--it's called *venting* back not too long ago when I was venting/whining during my treatment  So please feel free to whine/vent as much as you need to. I'll be listening and trying tohelp if I can! Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#38754 07-10-2005 04:19 PM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Thanx Nelie. I am swishing the salt/ bk. soda just in case I may get a sore in my mouth plus it keeps the spit flowing. I am so sick of shakes. I never in my life thought I would be but UGH and Blah.  I know week 4 is when it starts to get really bad so I am trying to prepare myself. Gods love on you all, Barbara~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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