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#38414 04-06-2005 07:26 PM
Joined: Apr 2005
Posts: 27
Susie Offline OP
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Apr 2005
Posts: 27
Thanks all you guys for replying. The more I read and learn about amifostine, I think it will be well worth us trying it for my hubby. Quality of life is of major importance and if it only spares part of one salivary gland, then that's a bonus. I just have to find out where we can obtain it now. Cheers


Susie
#38415 04-06-2005 11:06 PM
Joined: Apr 2004
Posts: 146
Gold Member (100+ posts)
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Gold Member (100+ posts)

Joined: Apr 2004
Posts: 146
Hi Susie,

After having a total glossectomy and right/left neck dissection, I had 37 rad treatments and had the dialy shot of amifostine. I was fortunate in that I was able to tolerate the amifostine and although not the most pleasant part of my day, I would do it all over again if I had to. I also remember the shots being very pricey but fortunately insurance covered it for me. Good luck to your husband and please know that although the journey is going to be long and tough, it is doable! Hang in there and know that we're here for you.

Hugs, Nancy


Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
#38416 04-08-2005 08:49 PM
Joined: Feb 2005
Posts: 2,019
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Feb 2005
Posts: 2,019
Holy cow. I had no idea the shots were that pricey. I certainly *hope* my insurance covers it!


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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