#38076 01-21-2005 01:45 PM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Jan 2004 Posts: 134 | Hi Im Stephany. If you dont know me, my mom has suffered with recurrent SCC tumors in her jaw bone. The docs have told her there is nothing that can be done. Our only hope now is hollistic remedies. Does anyone know of anything for the pain and to help with this disease? We are open to anything at this point. My mom is in a lot of pain, dropped tons of weight...Cant eat really or speak. She now eats baby food. She had 3 surgeries and 6 week sof daily radiation which has really taken its toll on her. Does anyone know of anything to help her with the pain an anything that would help kill this tumor that is in her? Please let me know and feel free to email me at [email protected] I would love to hear from you Thanks so much Stephanie
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#38077 01-21-2005 01:46 PM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2004 Posts: 134 | ITs Stephany again, I forgot to add that she has a tumor back in her jaw bone. :-( therefore, HBO treatments are not an option either.
Thanks
Stephany
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#38078 01-21-2005 02:13 PM | Joined: Jan 2005 Posts: 94 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2005 Posts: 94 | I'm sorry, Stephany. HBO doesn't help tumors. It only helps deal with some of the side effects of treatment.
As for pain, have her docs been unwilling or unable to help?
Ken
SCCA T2N1M0 diagnosed 11/02, radical neck dissection, 7 weeks radiation, 6 surgeries to deal with osteonecrosis, 10 weeks hyperbaric oxygen. "Live strong. Laugh often."
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#38079 01-21-2005 05:17 PM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2004 Posts: 134 | Thanks Ken. THe docs are sending her to pain management next week. I hope they can help. But the docs are saying no treatment for the cancerous tumor.
Do you know of any hollistic remedies?
Stephany
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#38080 01-22-2005 02:55 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Stephany, I have been following your posts for a while now. I an sorry that I didn't have any words to help for you or your mother. I do want to caution you about the many people who will want to sell you nearly anything to "cure" or help your mother. Just be very careful. I know of no herbal or wholistic cure for advanced cancer.
Spend your time with your mother instead of looking for false hope. Be absolutely certain you have gotten the best medical advice, and get other opinions even now.
Take care
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#38081 01-22-2005 06:59 PM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2004 Posts: 134 | Mark
Thank you so much for your message. Minnnie also warned me about that and my father said the same thing. I guess the best thing I can do now is be there for my mom. I just feel so desparate, that I should be doing something and finding a cure if I can. But my mom is getting treatment from the best docs over here in LA, and all I can do is pray and love my mom. THanks Mark for the warning.
Stephany
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#38082 01-23-2005 05:07 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Stephany, you are an awesome daughter! God Bless you and your Mom! Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#38083 01-24-2005 02:43 PM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2004 Posts: 134 | Hello Carol. THank you so much for your message. I see you have twins. I am a twin and my dad is a twin and I have 4 sets of twin cousins....Being a twin is awesome...How are you doing? I hope you are doing well.
God Bless you and your family
Love
Stephany
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#38084 01-28-2005 04:07 PM | Joined: Aug 2003 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2003 Posts: 71 | Stephanie-
You are amazing! I know that you have done everything in your power to help your mom...and believe me that shows your amazing love and hope for her and I am sure she knows it. You and your entire family are always in my prayers. Please don't hesitate to call me any time, we aren't too far away from each other and I'd be willing to come visit and/or help in any way I can.
Lorie
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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