Previous Thread
Next Thread
Print Thread
Page 2 of 3 1 2 3
#37936 11-29-2004 10:19 AM
Joined: Dec 2003
Posts: 116
Gold Member (100+ posts)
Offline
Gold Member (100+ posts)

Joined: Dec 2003
Posts: 116
I did feal a little claustra in it but dealt with it several ways. Relaxed right before the treatment. Took deep breaths as I was getting on the table. tought the most pleasant things I knew during the treatement. Kept my eyes closed so which helped not think what was around me. Just say your doing it to save your life.


SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
#37937 11-29-2004 05:58 PM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
I should mention also that I slept through many of my treatments. It was not really a big deal. I made a CD of some rippin' Gospel music and like Kirk, prayed and listened to God a lot on that table.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#37938 12-02-2004 06:34 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
I think the only time I had a real problem was when I walked into the radiation center with a bucket in my hand catching the you know what. I suddenly felt a big problem developing at the other end and one of the employees went into the bathroom ahead of me. After pacing the floor for what seemed like hours (seconds really), I bolted for the women's bathroom and as I hit the commode, I didn't know if I was coming or going. That was the worst day I remember and as I walked out of the bathroom the social worker was blocking me from sitting down while she asked if there was anything I needed. I finally staggered around her just in the time for the dietician to tell me I wasn't getting enough to eat.

Ahhhh...yes, I remember it well!

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#37939 12-03-2004 09:57 AM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
As much as I had nightmares about choking on my own vomit - I never did -never even got sick! They observe you all of time via CCTV and usually give you a bell or something to get their attention. Nothing really to worry about. They don't want you getting sick either. There is no sensation of anything during the treatment itself. It passes quickly.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#37940 12-03-2004 01:51 PM
Joined: Jul 2003
Posts: 1,163
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2003
Posts: 1,163
Hello Cave,

The radiation mask was a piece of cake. The trearment only lasted 15 minutes. I tossed mine in the garbage a couple of months ago. I'm not a saver. Don't fret over this part of your treatment. You will do fine!!!

Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#37941 12-08-2004 04:15 AM
Joined: Apr 2004
Posts: 23
Member
Offline
Member

Joined: Apr 2004
Posts: 23
Hi, Cave -- A little late in responding as I haven't been able to visit the site lately. My husband was claustrophobic also and the idea of the mask frightened him. He is now in his second "round" of radiation and states it is a breeze. He has, however, asked for and has taken valium or a similar drug to help him to relax while using the mask for radiaion. As I have stressed to him many times, the radiologists (and all other caregivers) are there to help you -- if you don't tell them your concerns, they assume you have none -- always, always !! tell them!! You'll be surprised how willing they are to make you as comfortable as possible. My husband was reluctant to tell them how uncomfortable he was in the position they put him in for radiation. He spent 3 days miserable before he broke down and let them know -- they immediately adjusted things to make him comfortable. They (as I) are CAREGIVERS -- take advantage of that for your mental and emotional health during this trying time for you.

#37942 12-08-2004 10:11 AM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Unlike Danny Boy, I kept my mask! I am going going to plant grass on it and make a self portrait Chia Pet.;)

My treatment by the way was 45 minutes - longer during the once a week xrays.

I'm not embarrassed to admit that I took Zanax for anxiety during this time.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#37943 12-08-2004 10:17 AM
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
Gary
When the grass has grown can I have a pic?
Sunshine.... love and hugs
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
#37944 12-08-2004 06:32 PM
Joined: Feb 2004
Posts: 218
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Feb 2004
Posts: 218
Hi Cave,
The only problem I experienced with the mask was near the end of my treatments when I had developed a pretty good case of mucositis. I was afraid of choking on the mucous and arranged a hand signal if I needed the mask removed immediately. The staff at Mass General were great about getting the mask off as quickly as possible once my daily dose of radiation was delivered.
Good luck with your treatments. - Sheldon


Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
#37945 12-08-2004 06:47 PM
Joined: Jul 2003
Posts: 1,163
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2003
Posts: 1,163
Gary,

I will need a photo of the mask with grass growing out of it. And I am not embarrassed
about needing the anti-depressants. This is one hell of a bumpy ride!!!!!

Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
Page 2 of 3 1 2 3

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5