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#37764 08-27-2004 04:37 AM
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Joanna Offline OP
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http://news.bbc.co.uk/1/hi/health/3598710.stm

New jaw grown on patient's back.

A German man has been able to eat his first proper meal in nine years after surgeons rebuilt his face using a pioneering jaw-bone graft.

#37765 08-27-2004 04:56 AM
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Amazing the treatments that are born from doctors not afraid to try new procedures. The quality of life is a large issue in the treatment of oral cancer.

Thanks for sharing,

Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#37766 09-01-2004 04:50 PM
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I sure was curious why it took nine years. In this country, it takes a few months and we eat much more than bratwurst!

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#37767 09-02-2004 03:14 AM
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I lost half my bottom jaw and was eating anything I wanted about 2 and a half weeks after the surgery. They used the bone from my leg. My leg is weaker then it used to be, I cannot run like I used to and it gets very tired after standing for a long time. But my jaw looks good and even with the effects of radiation, I am back to eating steak, etc. The jaw itself is stiffer now then before but I suspect that may be from the radiation.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#37768 09-02-2004 04:14 AM
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Minnie,

The BIG question...are you eating bratwurst yet? Maybe the hair on his back kept holding too much mustard? My wife hates hairy backs so I had to say it just in case she reads this. eek

Don't get me wrong, I think the experiment was incredible but there has to be a quicker way.
Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#37769 09-02-2004 07:18 AM
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Ed..................I am STILL laughing over your post!!! To be honest I have no idea what Bratwurst even IS. Tell your wife I'm with her on the hairy back thing.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#37770 09-02-2004 12:29 PM
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Minnie, it's a German sausange, the best ones are found grilled on a cut in half 50 gallon oil drum at church picnics or elementary school homecomings.

Un the U.S. they are geographically found roaming mostly in the area west of the Apalachians and east of the Rockies, As far north as the Canadian border and as far south as Texas apparently. Would be located next to the stand that sells corn dogs. Some have been spotted in exotic locations like Bien Otto's in Bangkok and my uncle's back yard in New Hampshire.

Best served with saurkraut and mustard, washed down with a cold beer.

Done properly, upon eating one you will think you have died and gone to heaven. Done improperly you will be spending a lot of time getting to know the others in line to use the "green bathroom" at the fair.

Come to think of it, the oil content of these babies makes it the perfect food with those of us with dry mouth, slide right down.

I couldn't resist.
Bob


SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
#37771 09-02-2004 01:47 PM
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Minniea,

If you lived in Wisconsin you would know what a bratwurst is. Bob is right it is a German sausage with lots of spices in it. They are larger than hot dogs and are best grilled and soaked in a pot of beer, water, onions and spices. Get a good brat bun and cover it with warm sauerfraut and you are in heaven.
Bob, You were correct I have been eating them often. I can't eat mine with the bun. Bread is to dry. But they do slide right down.

Just goes to show you you learn something new every day!!!

Best wishes to All, Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#37772 09-02-2004 02:21 PM
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After those wonderful descriptions it seems this small town, northern yankee needs to try this stuff. I laughed when I moved here to Virginia Beach and heard my husband talk about a "corndog". Now I feed the gross things to my kids, lol. For our second date my husband invited me over to his place for some "bar-b-que". I had moved here from Maine a few months before. I was excited at the thought of a nice steak cooked out on the bar-b-que. Imagine my dissapointment when he served me a sandwich with a bunch of pork stuck on it. Then there was the time he offered to "carry" me to the store................and the time he laughed till he was rolling when I told the kids to "dress their feet"............and when he looked at me like I spoke a foreign language when I asked him to get me something off the "sideboard".
This could be a fun thread with all of us so spread out around the world. Who drinks Pop and who drinks Soda???


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#37773 09-02-2004 02:22 PM
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My husband's Swiss grandmother taught me that the best bratwurst is made from veal, and she gave me a great bratwurst stuffing recipe for turkey that we use for Thanksgiving. Everybody fights to get the bratwurst and the turkey is kind of a side attraction.

Cathy


Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
#37774 09-02-2004 03:44 PM
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Minnie -- I USED to drink soda (not pop), but I can't yet handle the carbonation in my mouth (nor anything with a lot of pepper and spices). I miss my Mt. Dews and COkes, but then again my body probably doesn't miss all that sugar and caffeine...

I moved from NC to Arizona four years ago, and was surprised that bar-b-cue here WAS NOT pork on a bun, but a noun meaning "a cookout". We had pizza at our first bar-b-cue here!! What is that?!?! Ha ha...


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#37775 09-02-2004 04:13 PM
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Minnie,

Bratwurst has been known as Wisconsin Soul Food. Check this out:

http://www.bratwurstpages.com/brats.html

As everyone is telling you, it is a very traditional sausage originally made with fresh milk and eggs. Danny Boy has explained how to perfectly cook them and eat them. Brat is German for fry and wurst is sausage so technically they would be called fried sausage although most people grill them after boiling in the great concoction mentioned by Danny Boy.

Having worked in the pork industry for 20 years and living in the midwest for all but the last 5-6 years, I have pounded down more than my share of brats.

It sounds like you have waited longer than the man who grew his jawbone in his back for nine years. It may not be as good as a good pulled-pork sandwich with cole slaw but it is a different kind of good.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#37776 09-02-2004 07:21 PM
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Ok, so I grew up in St. Louis, and Bar-b-que was either pork spare ribs (not baby backs) or pork steaks, cut from I have no idea where on the pig but I've not seen them anyplace else in the country. Royal Crown soda was the cola of choice, they delivered to the door, same as milk, bread, and veggetables. Everything there was grilled if possible, including the bratwurst. I grew up in the Italian section, so our sausage of choice was salsicca (I think i spelled it correctly) or Italian sausage, again grilled, put on pizza, or cooked in your spaghetti sauce.

Washed our dishes in the "zink" watched TV in the "front room" and while sitting on the "couch"

Here, I drink "bing hong cha" (iced lemon tea or "shwei bien" (sprite) or "bing shway" (cold water). While pork is a staple and is very good here, I can't seem to get across to the meat cutter that I don't want the ribs cut into teeny little peices. Shame, I had my gas grill shipped over from the states, fitted it with a huge 20 gallon LP tank, and only used it aobut 5 times in the last 2 years. Makes a nice plant stand.

Bob


SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
#37777 09-03-2004 07:00 AM
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Bob,

The pork steak is cut from the Boston Butt which is the shoulder on the pig. Now you know why pig's are so confused having to wear their butt on their shoulder. Probably easier than us wearing our heart on our sleeve. The Japanese take the rib bones out from smaller, leaner hogs and make their bacon with the rib meat too. It is much better than our pure fat belly bacon.

I still get confused and call the living room the front room. We drink bo-bo cha here. Do you know what that is? It has those wierd jelly things in it that you suck right up in the straw. My wife loves it and I have been almost too scared to try it since radiation with that huge ball of chewy flying through the straw.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#37778 09-03-2004 03:19 PM
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Joanna Offline OP
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In the northwest we have "soda pop" which kind of goes along with our being broad minded. Bratwurst has its own festival here, and I wouldn't miss it.

And Ed, the jaw only grew for 7 weeks, not nine years (grin). But that makes a better story, for sure.

#37779 09-04-2004 01:33 PM
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Oh, Boy! A Food discussion! My very favorite thing! Such fun coming here with serious thoughts and having this irreverent group take your mind off your troubles!! smile
For me, there is nothing like planning a great meal and then buying wonderful things and then cooking them up and serving them to happy, expectant family and friends! Toooo sad that I haven't done that for over a month now frown
Tom is eating things today, however (happy day) and I pulled out his new propane-fired charcoal grill and seasoned up some nice fat country-style ribs (fancy name for sliced pork shoulder!) to throw on there. Although Tom is my grill-meister, I did a pretty darn good job tonight and HE ATE THEM smile It really takes so little to make me happy!
Around here we say 'soda' at times, but mostly people identify the drink they want with "Pepsi" or "Coke," etc.

He fell to 138 pounds this week, gang. I'm on a mission to get him back up at least 10 pounds before the next round - - - do you think I could lose my extra pounds like that??? No way!

EVeryone have a good night - or day -
Nicki smile


Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
#37780 09-04-2004 07:44 PM
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Nicki -- Tom and I are both right at 138 (and to think I was at 195 at this time last year)... we should have a contest or something... he who gains the most weight this week, gets another batch of your world famous ribs!!!

This is my third round with chemo, and I think this week the radiation has finally caught up with me as well... Not doing so well on the food front yet -- but hopefully will come around in a day or two... I crave things, just can't quite get the stomach excited about them yet...


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#37781 09-07-2004 06:40 AM
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Joanna,

Thanks for the clarification. The story in our paper just mentioned he was enjoying the bratwurst for the first time in 9 years! I read your version and it seems they weren't working on the jaw bone the entire time. I guess he should've pushed a little harder for about 8 1/2 years eh?

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#37782 09-07-2004 06:57 AM
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One would think, after what I and others have been through, that I would be shock proof, but the picture of that, that THING growing on his back really disturbed me. However, I am happy for him and his bratwurst.

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