Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#37764 08-27-2004 04:37 AM
Joined: Mar 2002
Posts: 1,140
Likes: 1
Joanna Offline OP
Patient Advocate (1000+ posts)
OP Offline
Patient Advocate (1000+ posts)

Joined: Mar 2002
Posts: 1,140
Likes: 1
http://news.bbc.co.uk/1/hi/health/3598710.stm

New jaw grown on patient's back.

A German man has been able to eat his first proper meal in nine years after surgeons rebuilt his face using a pioneering jaw-bone graft.

#37765 08-27-2004 04:56 AM
Joined: Jul 2003
Posts: 1,163
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2003
Posts: 1,163
Amazing the treatments that are born from doctors not afraid to try new procedures. The quality of life is a large issue in the treatment of oral cancer.

Thanks for sharing,

Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#37766 09-01-2004 04:50 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
I sure was curious why it took nine years. In this country, it takes a few months and we eat much more than bratwurst!

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#37767 09-02-2004 03:14 AM
Joined: Aug 2003
Posts: 1,627
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Aug 2003
Posts: 1,627
I lost half my bottom jaw and was eating anything I wanted about 2 and a half weeks after the surgery. They used the bone from my leg. My leg is weaker then it used to be, I cannot run like I used to and it gets very tired after standing for a long time. But my jaw looks good and even with the effects of radiation, I am back to eating steak, etc. The jaw itself is stiffer now then before but I suspect that may be from the radiation.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#37768 09-02-2004 04:14 AM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
Minnie,

The BIG question...are you eating bratwurst yet? Maybe the hair on his back kept holding too much mustard? My wife hates hairy backs so I had to say it just in case she reads this. eek

Don't get me wrong, I think the experiment was incredible but there has to be a quicker way.
Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#37769 09-02-2004 07:18 AM
Joined: Aug 2003
Posts: 1,627
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Aug 2003
Posts: 1,627
Ed..................I am STILL laughing over your post!!! To be honest I have no idea what Bratwurst even IS. Tell your wife I'm with her on the hairy back thing.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#37770 09-02-2004 12:29 PM
Joined: Nov 2002
Posts: 458
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Nov 2002
Posts: 458
Minnie, it's a German sausange, the best ones are found grilled on a cut in half 50 gallon oil drum at church picnics or elementary school homecomings.

Un the U.S. they are geographically found roaming mostly in the area west of the Apalachians and east of the Rockies, As far north as the Canadian border and as far south as Texas apparently. Would be located next to the stand that sells corn dogs. Some have been spotted in exotic locations like Bien Otto's in Bangkok and my uncle's back yard in New Hampshire.

Best served with saurkraut and mustard, washed down with a cold beer.

Done properly, upon eating one you will think you have died and gone to heaven. Done improperly you will be spending a lot of time getting to know the others in line to use the "green bathroom" at the fair.

Come to think of it, the oil content of these babies makes it the perfect food with those of us with dry mouth, slide right down.

I couldn't resist.
Bob


SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
#37771 09-02-2004 01:47 PM
Joined: Jul 2003
Posts: 1,163
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2003
Posts: 1,163
Minniea,

If you lived in Wisconsin you would know what a bratwurst is. Bob is right it is a German sausage with lots of spices in it. They are larger than hot dogs and are best grilled and soaked in a pot of beer, water, onions and spices. Get a good brat bun and cover it with warm sauerfraut and you are in heaven.
Bob, You were correct I have been eating them often. I can't eat mine with the bun. Bread is to dry. But they do slide right down.

Just goes to show you you learn something new every day!!!

Best wishes to All, Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#37772 09-02-2004 02:21 PM
Joined: Aug 2003
Posts: 1,627
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Aug 2003
Posts: 1,627
After those wonderful descriptions it seems this small town, northern yankee needs to try this stuff. I laughed when I moved here to Virginia Beach and heard my husband talk about a "corndog". Now I feed the gross things to my kids, lol. For our second date my husband invited me over to his place for some "bar-b-que". I had moved here from Maine a few months before. I was excited at the thought of a nice steak cooked out on the bar-b-que. Imagine my dissapointment when he served me a sandwich with a bunch of pork stuck on it. Then there was the time he offered to "carry" me to the store................and the time he laughed till he was rolling when I told the kids to "dress their feet"............and when he looked at me like I spoke a foreign language when I asked him to get me something off the "sideboard".
This could be a fun thread with all of us so spread out around the world. Who drinks Pop and who drinks Soda???


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#37773 09-02-2004 02:22 PM
Joined: Apr 2004
Posts: 837
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Apr 2004
Posts: 837
My husband's Swiss grandmother taught me that the best bratwurst is made from veal, and she gave me a great bratwurst stuffing recipe for turkey that we use for Thanksgiving. Everybody fights to get the bratwurst and the turkey is kind of a side attraction.

Cathy


Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
Page 1 of 2 1 2

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5