#37725 08-31-2004 10:48 AM | Joined: May 2003 Posts: 8 Member | OP  Member
Joined: May 2003 Posts: 8 | Well, home from the hospital. Nine hours of surgery two days in ICU then back home on Sat.Went back to see the Docs today and they said I am doing great! They still don't have all the path. reports but should have them by Thursday. The flap on the side of neck looks good It is just whiter than the rest of my neck but thats OK I am not very vain anyway. My wife has been by my side the intire time she is so great.The frozen sections that they did all came back no cancer so I am praying that I will not have too have rad/chemo but we will see. Thanks for all the prayers and post.
Bobby
SSC stage IV Base of tongue
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#37726 08-31-2004 11:04 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Bobby, Welcome home. Glad you got through the experience and sounds as if the results were good and may be very good. Aren't wives great. Mine was with me the whole way as well, even though I was a jerk upon occasion. She is a saint. Let the doctors advise you on the rad/chemo. If you need it, take it. If they advise against it, think about it because that may be the difference between success and failure. Good luck and keep us posted. Will continue praying for you.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#37727 09-01-2004 04:47 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Bobby,
Glad to see you home so quick. Nothing compares to sleeping in your own bed...even the great hospital food that you didn't get to experience!
I know I would have never made it without my wife, too. I will be praying for you, too.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#37728 09-02-2004 01:38 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Good Luck Bobby!!!
I'm sending some prayers your way. Beat the beast down for good!!! Hoping your healing goes well.
What kind of radiation are they going to give you? Also what kind of chemo drugs are you going to get?
Best Wishes for a speedy and full recovery!!!
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#37729 09-04-2004 01:49 PM | Joined: Oct 2003 Posts: 89 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2003 Posts: 89 | BobbyJ,
I like your attitude of "But whatever it takes I am ready"!
I try to take that attitude, it helps me and feels so much better than the wondering, worrying, and fear (which can be hard to avoid).
Glad to hear good results of your short hospital stay. We'rre cheering for you!
History of leukoplakia <2001-2004. SCC lateral tongue 9/03; left radical neck dissection & hemiglosectomy 10/03, T2-3,N0M0; 28 IMRT radiation completed 12/03. 30 HBO dives Oct-Nov 04 for infections and bone necrosis -mandible.
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#37730 09-04-2004 01:53 PM | Joined: Oct 2003 Posts: 89 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2003 Posts: 89 | ps I forgot to say that I had a flap reconstruction too - from my chest to rebuild the neck muscles and the floor of the mouth. Scars now (almost 11 months later)are not too noticable, still some stiffness in neck from surgery and the follow-on radiation, but I am so happy to be here!
History of leukoplakia <2001-2004. SCC lateral tongue 9/03; left radical neck dissection & hemiglosectomy 10/03, T2-3,N0M0; 28 IMRT radiation completed 12/03. 30 HBO dives Oct-Nov 04 for infections and bone necrosis -mandible.
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