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#37663 07-15-2004 05:41 PM
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I'm all set to go with round two of radiation this Monday. We're also adding Cisplatin chemo to the mix, starting Monday as well (in three week intervals 2-3x).

Most of my anxiety has been over the chemo, as the docs say my IMRT radiation shouldn't be as tough this time because they're not zapping my mouth or esophogus. Reading Lance Armstrong's book this week really fired me up, but I had the wind taken out of my sails this afternoon.

The radiation oncologist talked to my wife and said my new plan will feature 54 stops, and I'll be on the table for an hour each day!! Acck!!!!!

I certainly wasn't prepared for that. My first plan last winter took about 12-15 minutes a day, and only featured seven stops. That was plenty tough, and took a lot of mental energy just to get through that.

How on earth am I going to stay completely still, my head locked into suffocating plastic mask, for a whole hour? Did anyone else have such a complex IMRT plan? Any tips on how to "pass the time" while on the table? They better let me bring CDs or something into the room...

Sorry to whine. This, too, shall pass. But I had to share the shock with someone...


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#37664 07-15-2004 08:07 PM
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I was on the table for at least 45 minutes each day and over an hour once a week for x-rays. I just loaded up with Zanax and slept through it. I also brought in my own CD to help also.

They want to make sure that they get it this time.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#37665 07-15-2004 08:51 PM
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Eric,

"Good Luck" on your second time. Chemo and an hour on the table can't make it easier. I start my treatment on Monday and can't figure out how I will be able to keep my arms from sliding off the side of the table during my 15 minutes.

I'm not much help; however, you'll be in my thoughts and prayers. Kill the damn thing this time, will ya?

David


T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
#37666 07-15-2004 10:42 PM
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Jeez Louise, and hour?? at one time. Have these guys ever heard of hyper fractional radio thereapy, break it down into two times a day, once in the morning and once in the afternoon, but only half (or a little more than half) each time.

Gets the job done quicker, with less side effects I'm told, plus only half the time each time on the table. Might not be very convenenient if you have to travel a good distance.

Otherwise, hang in there, anything you can do to pass the time, like sleep will help. Try books on tape if the cd doesn't work.

Bob


SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
#37667 07-15-2004 11:41 PM
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Eric,

You're not whining - an hour is an awful long time on the table with that damn plastic girdle (as I came to see the mask) encompassing your head and face. Although my time on the table was short in comparison (10-15 minutes) I found that I usually fell asleep! I guess I was just so tired from all the treatments that I didn't need any additional meds to get me through it. But if meds is what it takes to get through being strapped down for an hour, then go for it. I also think the CDs would be a nice distraction. I also had cisplatin and compared to radiation that, for me, was a picnic in the park (so to speak). Hang in there and I'll be pulling for you.

Nancy


Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
#37668 07-16-2004 03:55 AM
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Eric-
Wow, I can't imagine an hour on the table. When the mucus gets thick later down the road it is going to be extremely hard lying on your back for that lenght of time and not gagging. If you can get it split in half as Bob suggested you might have an easier time. Good luck to you and my prayers are with you. - Kris


SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
#37669 07-16-2004 05:46 AM
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Eric,

I really have no suggestions but wanted you to know I will be praying fervently for God to comfort you through the seemingly long periods every day and work more miracles in your life.

I remember once my mother had 3 MRI's in one day and ask if they could just run them together...for 2 1/2 hours. They tried to talk her into but she insisted she did not want the spend the whole day at the imaging center. They were amazed, as was I, that she did it without any medication.

I am sending you best wishes and warm thoughts.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#37670 07-16-2004 08:01 AM
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Well it won't be fun but it alsways could be worse. I was on the table for 30 minutes each day with 10 stops. I closed my eyes, tryied to take a nap and tought of the most pleasant things I know of or would like. It seemed to help. The best part the 6 weeks went by so fast I couldn't believe I was done. So its a mind thing and if you approach it as I can find a way through this instead of how am I going to make this it will go easier. Good luck and sweet dreams.


SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
#37671 07-16-2004 09:42 AM
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Good luck, Eric,

surely they'll let you bring a cd-player, I don't see why not. I spent my 10-15 min. radiation periods reciting poems and songs in my head, but an hour - I would go with medication and hope to sleep through it. I never suffered from the mucus hardly at all until after the radiation was over, I hope it'll be the same for you.

Sometimes I would lie there trying to visualize the cancer cells being bombarded by the rays, but that never worked too well. You know, going "Kill, kill, kill", in my mind.

I hope they get them this time.

Leena


scc right tonsil T1N1M0, right tonsillectomy + modified neck dissection 3/04, radiation IMRT both sides X33 ended 6/04.
Also had renal cell carcinoma, left kidney removed 11/04
#37672 07-16-2004 10:29 AM
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Eric, sorry to hear of your future protracted time on the rack. I passed the time with prayer when I was on the table. I prayed for everyone I knew and lots that I didn't, including for those people who end up marrying my kids that I haven't yet even met. They will need all of the prayers they can get. I was on the rack for 20-25 minutes each day and up to 45 minutes for x-rays. They had music also, so that helped as well. Hang in there and try to think pleasant thoughts.


Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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