#37502 06-11-2004 03:29 AM | Joined: Apr 2004 Posts: 50 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Apr 2004 Posts: 50 | I received a good report. No problems, so I was relieved. Back in another sox weeks. So that is one down, many to go. Scans are scheduled for four months post op, I am not sure why that timing makes sense. Dr said that is as we discussed last time, but I don't remember probably due to my elation at the intial good reports.
I also mentioned interest in any testing that could be done now for possible early detection of other sites and that was meet with low interest.
Thanks for the thoughts and prayers. So far, so odd and I am very thankful.
Thanks,
John | | |
#37503 06-11-2004 04:11 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | John,
Congratulations -- hopefully this will be one of many good reports!
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#37504 06-11-2004 06:48 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hi John,
The timing of the scans makes total sense because the scar tissue and healing early on can result in erroneous data. This scan will probably be used as a baseline scan in the event that a subsequent scan is required as a result of "regions of interest" detected during your regular physical, visual and palpation exam.
The NCCN practice guidelines don't suggest any other scans other than an annual chest x-ray. My personal feeling is that an annual PET/CT would be useful as part of "watchful waiting" for "distant" metastesis.
Congratulations on your good report!
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#37505 06-11-2004 10:06 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | John,
You go, dude! I am so glad you received good news! Now you have a little bit of time to relax. I was up all night Monday in preparation of my exam on Tuesday. My wife usually asks if I was up all night studying but this time she quietly shuffled off to work. I have asked her not to go the past couple of times to help us move on. God bless her, she has been through so much already.
God bless you, too!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#37506 06-11-2004 03:29 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | John,
Praise God...always so wonderful to hear good news. I know you are truly happy and thankful.
God Bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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