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#37338 05-01-2004 03:08 PM
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Brian and others - I just wanted to thank you for your information concerning the flouride trays I said were a waste of money for Dan because he wasn't able to use them throughout treatment and weeks afterwards. I read him the posts from everyone, and we decided it was in his best interest to try again at least a little bit each evening. It's been hard enough trying to fight this horrible cancer...would like to avoid long term dental problems due to the radiation.
Again, just wanted to say thanks!!
Debbie


Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
#37339 05-02-2004 03:26 AM
Joined: Mar 2004
Posts: 417
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I know what you mean... I have been unable to use mine, gags me... I Lack another week in therapy.


Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
#37340 05-02-2004 04:13 AM
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My dentist says Denta 5000 Plus is just as effective but from the posts I am not sure. You use about a pea size amount and brush every night before bed. You have to have a prescription to get it.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#37341 05-02-2004 02:28 PM
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Posts: 372
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We have also just purchased Biotene toothpaste and mouthwash and Dan really likes that, too. So if you are in need of some good, non-alcohol products, Biotene is pretty good.
Deb


Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
#37342 05-03-2004 03:17 AM
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Posts: 116
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I also found Biotene mouthwash works well before I go to bed to reduce the dry mouth and scratchy throat during or after radiation. It help get me to sleep for a while before I wake up with the dry mouth. So it helps initially.


SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
#37343 05-03-2004 07:11 AM
Joined: Apr 2004
Posts: 482
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I use the flouride trays for about 10 minutes before bed (I read to take my mind off of the situation) and I use the Biotene toothpaste before. I haven't tried the Biotene mouthwash (even though my wife bought it for me it has sat in the medicine cabinet because you get sick and tired of all of the stuff you have to do what with pain pills, trays, antibiotics, pegs, etc, etc, etc, you have to say enough somewhere). I will try the mouthwash now, though, if you all say it is so good. Thanks, Kirk Georgia


Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
#37344 05-03-2004 07:11 AM
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Posts: 482
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I use the flouride trays for about 10 minutes before bed (I read to take my mind off of the situation) and I use the Biotene toothpaste before. I haven't tried the Biotene mouthwash (even though my wife bought it for me it has sat in the medicine cabinet because you get sick and tired of all of the stuff you have to do what with pain pills, trays, antibiotics, pegs, etc, etc, etc, you have to say enough somewhere). I will try the mouthwash now, though, if you all say it is so good. Thanks, Kirk Georgia


Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
#37345 05-05-2004 12:47 PM
Joined: Jul 2003
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Hi Debbie,

I have ben using the Biotene toothpaste and mouthwash since August and have had no problems.
I had a crown prep last week and get the Crown put on next week. I had two small cavities that he is going to fix next week also. Gary warned me about good dental hygene and I have been very
faithful in brushing and using the mouthwash at least three times per day.
How is Dan doing? I have been thinking about both of you and I say a prayer for him every day. He is lucky to have you as a caregiver.
I hope you both can attend the reunion later this year. I am looking forward to meeting so many members. Saving up alot of hugs.

Best of luck to you and Dan, Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#37346 05-06-2004 06:52 AM
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Debbi-
I've been using the Biotene gum if I'm stuck in a meeting and can't brush my teeth after a meal. I usually use the Biotene toothpaste during the day. Besides mouthwash they also make a gel that I have also used that keeps my mouth pretty moist for a couple of hours. Haven't been using the flouride trays as that stuff still gags me 20 months out from treatment. But I do use a perscription flouride toothpast every evening. Have not had cavities in 2 years. Since reading these posts though I think I'll try the trays again. Maybe I just put it on to heavy. - Kris


SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
#37347 05-06-2004 11:42 AM
Joined: Apr 2004
Posts: 146
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Hi, I'm new here but wanted to add my 2 cents worth. I had a total glossectomy in July 2003 with left and right neck dissection. I have been using the fluoride trays every night for about 30 minutes before bed. I guess all people really are different because they (and the fluoride) don't make me gag so I guess I'm pretty lucky. I haven't tried any of the biotene products but I do brush my teeth with SF 5000 plus toothpaste (by prescription only). So far all is well at the dentists office. Anyway, just wanted to add something to this very helpful website. I plan to post something to the "introduction" section soon so as to introduce myself to all of you and get your input on some questions I've been mulling around in my brain. Thanks! Nancy


Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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