#37323 05-07-2004 09:34 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) |  Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Dan,
I have trouble with several letters including Ls and Rs, My name is Lynn Furlich. My daughters are Sally and Rachel. God has the most wicked sense of humor. It's taken me awhile to laugh.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#37324 05-07-2004 01:22 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hey Lynn, Reading your last post made me smile, I sometimes have trouble with Rs and Ss, don't you know my husband's name is Steve and my son is Steve Jr, daughter is Rachel......gotta laugh about it!!!!!!!!!!!!!Take Care, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#37325 05-07-2004 01:30 PM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Hi Lynn,
The only real trouble I have had with speech is due to dry mouth. Keep that water bottle close to you at all times. My wife says I seem to have a much more pronounced Chicago or midwestern accent. Doos,dees,doos. Thankfully I am from Chicago so I can get away with it.
Good luck, it gets easier I promise.
Robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#37326 05-07-2004 02:51 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | You guys are too funny...what we all have in common sometimes is too much. Dan has trouble with t's and d's and our names are Dan and Debbie, kids are Tony and Todd!
Texas Teacher - good luck...I think everyone's trouble with speech is minor. Dan is in sales and drama director at our church, in local plays, etc...so he really needs his voice and it's come back pretty good. Someone said for a while it sounds like a "Marge Simpson"...that is so true!!
God Bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#37327 05-07-2004 04:04 PM | Joined: Apr 2004 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2004 Posts: 33 | Oh my gawd - I do sound like Marge Simpson!!!! | | | 
#37328 05-14-2004 01:02 PM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | Cathy- I am imagining you doing a Marge HMMMM... I have trouble with s, and spelling b and d outloud can confuse whomever is listening to me. I have mentioned before that I frequently have to refer folks to the phone number 676-7777 YIKES. My partial glossectomy consisted of loss of 25% of the front of my tongue on the right, other "righties" out there with similar difficulty?  Sincerely, Lisa
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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#37329 05-25-2004 08:04 AM | Joined: Mar 2004 Posts: 24 Member | | Member
Joined: Mar 2004 Posts: 24 | I had a nack dissection and radiation. Radiation ended 15 months ago. I have trouble with a few letters and like the other posts my name is difficult for me to pronounce. I was able to speak better before radiation, surgery did not cause me graet problems. However, I have switched ENT's to Memorial Sloan Kettering and they favor Rad/Chemo over Surgery/RAD. Thick saliva is my mahjor problem. I always feel as though my tongur is overrun with saliva. My radiologist says it will probably remain this way. He recommends a cough surpressent for possible relief. | | |
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