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#37245 05-25-2004 12:41 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) |  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | The links to the Therabite device manufacturer (where you can order one) are on the page I posted above as well as on the reasources page of the website.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#37246 05-25-2004 06:01 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Vicki,
I did 30 Hyperbaric Oxygen treatments and, as JoAnne says, they are easy. The chambers are quite comfortable and can actually be relaxing. Good luck with it.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#37247 05-26-2004 12:28 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Before ordering the Therabite on your own, check with your doctor. SOME insurance companies will cover the device if prescribed by a doctor. But make sure they know it is not for TMJ. Heather's company would not pay if for TMJ, but did when the doctor made it clear the trismus was a direct result of her cancer treatment.
Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#37248 05-26-2004 03:17 AM | Joined: Feb 2004 Posts: 56 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Feb 2004 Posts: 56 | Rosie,
Thanks for the input, I will be sure to discuss it with the radiologist. He is now about half way through with the HBO treatments. Once that is finished then we can deal with the Trismus issue. Has not had any pain medication in weeks. Which is wonderful, considering he was taking Dilaudid and Morphine so much before. Thanks again to all the wonderful people who post here offering advise and inspiration. Will keep you abreast of the situation. God Bless!!
Vickie | | |
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