#37136 03-29-2004 06:32 AM | Joined: Feb 2004 Posts: 40 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Feb 2004 Posts: 40 | That meaty looking stuff erupting about my tube I was told is granulation tissue. My body is apparently trying to close the PEG hole.
I will be getting it removed next week. Did anyone out there experience this problem? Can you tell me exactly how it's removed? The first question I asked the nurse was 'will it hurt?' & I'm told 'yes' w/a nervous giggle over the phone. ROLL MY EYES!!! Anyrates any advice/help you can give would rock. Thanx in advance.
Dig.7/03 3cm+ lymph nodes & base of tongue tumor. Radical neck dissection w/removal of one neck muscle, laser removal of tumor. 47 sessions of radiation, 2 doses of Cisplatin & PEG tube 40yrs old non-smoker/drinker
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#37137 03-29-2004 07:38 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I also had granulation tissue around my Peg and they would use some silver nitrate on it and it would settle down.
Getting the tube taken out is overwhelming but not all that painful. I think the thought of what they were going to do was worse then the split second pain from the removal. They simply pull it out, quickly. Quick second of pain and they send you home. Take my word, it's a piece of cake.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#37138 03-29-2004 12:01 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Minky, several people from the hospital told me that it was REALLY going to hurt when the PEG came out. Listen to Minnie. It is so quick. I enjoyed the opportunity to holler at full volume in a public place - but just one holler, then they slap a bandaid on it and home you go. Minnie is also correct that thinking about it is MUCH worse than having it done. You will do fine. | | |
#37139 03-29-2004 12:15 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hi Minky,
I had them sedate me with the same drug as when they put it in. I am a chicken for pain. The Doctor just pulled it out , it hurt for a second or two and that was it. I had it in for 8 months.
I now have two belly buttons!!!!!
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#37140 03-29-2004 01:41 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Is this one of the many positive features of the wonderful PEG? :p
Actually I count 3 wonderful features in this thread.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#37141 03-29-2004 04:00 PM | Joined: Feb 2004 Posts: 45 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2004 Posts: 45 | Dan....
I'm with you. I had the sedation also. In fact I fell asleep!
Khaja
Khaja
SCC Base of Tongue Stage IV. Diagnosed 12/02
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#37142 03-29-2004 10:43 PM | Joined: Mar 2003 Posts: 189 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2003 Posts: 189 | Dan, you are so funny! Now I know why we hit it off from the start.
Dennis said the exact same thing once his PEG was removed...He has two belly-buttons!
Love ya,
Mandi
Husband diagnosed with stage III tonsil and floor of mouth cancer in August 2002. Three rounds of chemo/42 RAD treatments. Upper right lung lobectomy in March 2003. (Benign)
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#37143 03-30-2004 03:41 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Thank You Mandi,
You are a survivor!!!! Getting closer to the time when we will "break bread"!!!
Love Ya, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#37144 04-01-2004 05:56 AM | Joined: Feb 2004 Posts: 40 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Feb 2004 Posts: 40 |
Dig.7/03 3cm+ lymph nodes & base of tongue tumor. Radical neck dissection w/removal of one neck muscle, laser removal of tumor. 47 sessions of radiation, 2 doses of Cisplatin & PEG tube 40yrs old non-smoker/drinker
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#37145 04-01-2004 06:15 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Minky -you are truly funny! I had coffee blowing out my nose all over the keyboard!!!!
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#37146 04-01-2004 06:18 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hers was funny enough, but when I read about blowing coffee I did the same thing  with tears...
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#37147 04-02-2004 12:39 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | My tube didn't hurt at all and I am a B-I-G baby! I stopped at Church's Fried Chicken a block from the doctors office, had my wife call the doc and make sure I was supposed to eat right away and chowed down.
Sometimes when food lodges in my throat my body signals a sneeze and LOOKOUT the food is going to blow. I know to keep a napkin around because I know exactly when it is going to happen. Luckily it has only been at home...so far.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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