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#35887 07-06-2002 02:55 PM
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Since we are on the subject, I'd like to hear from others who have had concurrent rad/chemo or chemo after their radiation.

Specifically I'd like to know what chemotherapy agents were used. We have our first appointment with the medical oncologist Tuesday so I'm getting prepared.

Thanks.

Cynthia

#35888 07-07-2002 05:52 AM
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Cynthia.....I had both chemo and RAD at the same time and it is a difficult treatment regime. I was very sick and for a very long time after treatment was completed.

My chemo drugs were 5fu and cisplation. However, after the second round of the cisplation I noticed some hearing loss with certain pitches and they immediately switched my chemo cocktail---I just don't remember what they switched it to. I still suffered the high pitch hearing loss and am still bothered by it today. I did have my hearing tested after treatment and it came back "normal range hearing functionability " so I was lucky.

If you'd like to e-mail me personally with some questions I'd be glad to answer them the best I can. [email protected] Sincerely, Donna


SCC first time 1989, with a diagnoses of 'cancer in situ' removed lesion, no other treatments.
SCC recurrence 1997 of tongue and floor of the mouth. Stage III /IV Hemmiglossectomy (removed over 60% of tongue/ floor of the mouth), free flap, modified neck, RAD and Chemo(cisplatin, 5fu) simutainously.
Cancer free 6, yes, six, years!
#35889 07-07-2002 09:30 AM
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After the hearing scare with Cisplatin (Donna and I are rare and special!) I was switched to Taxol and Carboplatin. Weekly instead of every three weeks, concurrent with radiation. Seriously, about the hearing thing, the oncologist, in his 50's, said it has been 20+ years since he has had anyone experience a hearing problem. As far as how I felt on Cisplatin, I was just out of it for three days with all the pills they pushed at me to keep me from vomiting. Slept through all my rad treatments, which are 40 minutes long.
Joanna
P.S. Thanks, Cynthia, for the WBC info.


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