#3526 08-31-2004 01:27 PM | Joined: Aug 2004 Posts: 45 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Aug 2004 Posts: 45 | Thank you so much David.....:-))
Mom said I shouldn't keep coming to this site because I have learned too much...:-)) In a way I think that, but I want to know what I can so I can help her. I think I am going to make a list of questions. I just hope I don't forget the list....LOL I guess we will know everything on Thursday.....positive thoughts.....:-))
Christy | | |
#3527 08-31-2004 02:00 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | What is a (Quadroscopy) Biopsy? I have been unable to find that term. It must mean 4 of something.
Christy, you may end up in a situation where you have to counsel your mother. You have been functioning as the primary patient advocate here. I am a little surprised that your mother isn't here as well.
You mentioned your Grandma was a smoker - both cancers can be caused by smoking although they are typically entirely different types.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#3528 08-31-2004 02:01 PM | Joined: Mar 2003 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 64 | Christy,
Keep using this site. The more you know, the better advocate you can be for your grandma. I would have been a basket case without this site as my husband went through his two bouts with SCC.
Thinking of you and praying for you.
Lowanne | | |
#3529 08-31-2004 02:08 PM | Joined: Jul 2004 Posts: 188 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jul 2004 Posts: 188 Likes: 1 | Gary,
My original ENT used the term Quad-Scope to refer to an endoscope of trach, lungs, esophogas, and stomach, and said he would biopsy anything that looked suspicious. That may be what they're calling A Quadroscopy Biopsy.
Just a guess.
Chuck
SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun.
It's always something
"Adversity doesn't build character, it reveals it."
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#3530 08-31-2004 02:22 PM | Joined: Aug 2004 Posts: 45 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2004 Posts: 45 | Hello Everyone,
That was my take on the procedure too. Mom said they will use a camera and they will biopsy any areas that seem suspicious.....that is exactly it.....I think. The procedure takes about one hour. I was trying to find it online too, but couldn't.
Mom my was on the site a few weeks back, but she couldn't handle it. She hasn't been back since. The same week we found out about Grandma mom was waiting for x-ray result too (lung cancer). The results came back negative for lung cancer, but she has chronic lung disease with asthma. She is a mess herself. I am trying to keep everyone together.....and nobody knows I am falling apart too.....:-((
Yes, both my Grandma and Mom smoke. I begged my Mom to try and stop tonight. I was crying and telling her I didn't want to go through this with her too.
I think my Grandma has the Squamous Cell Carcinoma cancer.....not 100% sure yet. Her first biopsy says this type of cancer is favored over the Sarcoma cancer.
Christy | | |
#3531 08-31-2004 05:21 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Thanks Chuck,
it sounds like they're interested in any area with squamous cells.
We're here for you Christy. Maybe you can ask the hospital social worker to find a support group so you can get some one on one support.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#3532 09-01-2004 11:54 AM | Joined: Oct 2003 Posts: 49 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2003 Posts: 49 | Christy,
I really don't have any answers for you but I will pray for you and your grandmother.
5-02 SCC T1N1M0 Stage 3 Right Tonsil
6-02 Right Radical Neck Disection
9-03 Recurrent SCC Dx Stage 4 unknown prim
12-03 7 Chemo
12-03 36 Rad
5-04 Left Upper Lung Wedge Resection neg
7-04 Right Parotidectomy
9-04 Began IMRT
10-04 Ended IMRT
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#3533 09-01-2004 03:06 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Christy,
I am so sorry you are having to deal with so much all at once. Be sure and take time for yourself to just enjoy a breath of air every now and then.
If your Grandma's doctors are already speaking of "palliative care" in the US at least it opens many doors for support such as hospice. We used to have a program called "bridge" that allowed you to set up the hospice care team and continue with treatment. When the doctors mention more quality of life factors versus curative factors that should be enough to provide more services with people more equipped to deal with some of the more intense issues you, along with your entire family, are facing right now.
Your mother and your grandmother are very fortunate to have you spending the time to learn as much as you can to help your grandmother right now. Be sure and write down as many of the questions that you have and take your list and work on resolving the issues that are immediately affecting your grandmother's well-being.
I will be praying for you, your mother and your grandmother.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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