#34274 08-07-2005 02:17 PM | Joined: Jun 2005 Posts: 49 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Jun 2005 Posts: 49 | Barb, you amaze me! I find it very encouraging that you are able to be up and around. But, Please sleep when you need to and cry if you want. I slept the whole time during radiation. I assume it was the drugs and pregnancy that caused me to be so tired. Don't worry what others think if you are in bed or if you are crying. You need some type of outlet for your emotions. And if you don't mind taking more medications your Radiation oncologist will prescribe an antidepressant. Of course, I couldn't take one because of the baby ( I don't understand that though, I was taking so many pain meds and going through radiation what was one more drug!)
Take care and get some rest there will be plenty of time afterwards to do anything you want. Mary
Dx June 2004 stage III right tonsil 1 node involved, 70 radiation tx completed 08/20/04, no chemo or surgery, 32 years old and 26 weeks pregnant at dx and tx. & non-smoker and non-drinker
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#34275 08-07-2005 04:04 PM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Well once again I am better. Last night I packed 3 boxes and took a ton out to the dumpster since I am moving at the end of next month and I want to get some stuff into storage this month.
Go ahead and yell at me. I am ready.........
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#34276 08-07-2005 05:36 PM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2005 Posts: 663 | <<<<<<YELLLLLLLL>>>>>>>
:-)
Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#34278 08-08-2005 04:42 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Why am I surprised? hoho 
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#34279 08-08-2005 06:44 AM | Joined: Aug 2005 Posts: 4 Member | | Member
Joined: Aug 2005 Posts: 4 | Please don't laugh at this, but my radiation therapist told me to use "Bag Balm" (yes, as in a cow's udder bag) to aid in the soreness of radiation burns and ulcers. It took my wife going to four or five places, but at a local feed store, they had the balm and I have been using it since. It is wonderful, scentless, and lasts for hours and hours. My wife says her hands are much softer after helping apply my stuff to me. You might give it a try. Good luck and God Bless!! | | |
#34280 08-08-2005 02:36 PM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | You know I was thinking about that for a while. I did get the Cow cream at the drugstore but I am sure thats not as intense. I could go to the feed store in town I recon and get some. I have one more rad to go tomorrow. I am so glad its finally done. Now just the wait to see if it worked. I am hopefull so now if I can avoid getting hit with a truck I should be fine. GB, Barb~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#34281 08-08-2005 03:56 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | My family has used bag balm for generations now, we use it for every and anything! Comes in a green tin can with one size being perfect to keep in your purse. It's pure magic.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#34282 08-09-2005 07:59 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | I am going to get some this week Minniea. I am kind of a "helper" at the center. I try stuff and let them know how it works. Of course they tell me what ingredients not to get bur otherwise its up to me.
Have a great day!
Barb~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#34283 08-09-2005 04:58 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | You know you are an OCF member if you have Bag Balm rather than Vasoline Intensive Care Lotion on your bedside table. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#34284 08-11-2005 06:53 PM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2004 Posts: 134 | Barb,
I am so sorry you are going through this! You have every right to vent... :-) If there is anything I can do for you, let me know. If I was in Ohio, I would come over and give you a hug...So I am sending you a hug over the internet. Hang in there. It will get better.
Love
Stephany
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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