#34151 07-03-2005 08:28 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Helen
Oh My girl,you have really been thrown in at the deep end haven`t you.
Kind of reminds me of " If it were not for bad luck I would have no luck at all".
You know what Helen ? you are one of the strongest, kindest, women I know. You have been so generous with your time to others on this board and you can bet that if good wishes can make a difference you will find your way through all this.
Our very best wishes for you and your Mum.
Take Care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#34152 07-03-2005 11:17 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Helen
You have a lot to deal with at present. I am thinking of you along with all your supporters here - you have offered so much to us.
I send love and light to you and your Mum. Helen
RHTonsil SCC Stage IV tx completed May 03
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#34153 07-03-2005 11:51 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Helen, My thoughts and prayers are with you and your Mum. Oh my, you have a lot on your plate, wish I were there to help in some way. Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#34154 07-03-2005 06:10 PM | Joined: Jun 2004 Posts: 155 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 155 | Helen
I if good thoughts could fix this you have them for sure...I don't know how hard it is to be in the driver seat making treatment decisions but I do know how hard it is to be a passenger,re your Mom...THe only way to is to have a frank disscusion with her regarding treatment and of course encourage her to be aggressive but be prepared to accept her choices..my granddad is 92 and also bright as a button dealing with several TIA's and possible carotid aterey surgery which they are not sure he can survive and his attitude is GO FOR IT..He is not saying that lightly he knows without the surgery he has a possible greater chance of survivng with a lesser quality of life but ultimately it will be his choice
Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04
Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.
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#34155 07-04-2005 05:10 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | Helen. After so many supportive, kind and loving thoughts you have posted to me, I can't believe you had all this going on !! Please accept my "hugs" and to wish you the best. I wanted to ask if you had heard of the CyberKnife...? You might look into possible implications for one of you. http://www.stanfordhospital.com/clinicsmedServices/COE/cyberknife/ckHome.html
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#34156 07-05-2005 03:45 AM | Joined: Jun 2005 Posts: 3 Member | | Member
Joined: Jun 2005 Posts: 3 | dear Helen,
All my prayers are with you and your mother...
God bless you.
yuumu | | |
#34157 07-05-2005 03:59 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Helen-
Many prayers sent your way. Sometimes you just have to close your eyes and hang on for the ride, but wanted you to know you are not alone! Across the miles with love, Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#34158 07-07-2005 10:06 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Thanks all for you love, hugs and prayers.
Well my Mum has been told no treatment is available and I just hope that is not because of her age, the family has been told months rather weeks, but we will see.
I saw my ENT doc on Monday and he says to operate would possibly make things worse.
I have a paralised vocal cord and to repair that would make worse the 30% of narrowing of my trachea, so when you ask about side effects, remember that some are so rare that no-one ever mentions them.
Once again thanks to all my friends and fellow travelers....
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#34159 07-07-2005 03:20 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Helen, please try to hang in there, and try to enjoy every day that you and your Mom can share. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#34160 07-08-2005 04:14 AM | Joined: Apr 2005 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2005 Posts: 80 | We get caught up in our own trials and tribulations...feeling sorry for ourselves, and then hear of someone going through unimaginable pain, as you are now. My issues pale in comparison. Losing your Dad, your Mom's prognosis, your health worries.... I am so sorry you are dealing with all this now. I know you will be a "rock" for your Mom and help her however you can.
Hugs to you and your family.
Jennifer
Jennifer
Stage II (T2N0M0) SCC diag 4/21/05; partial glossectomy & selective neck dissection (good margins and lymyph nodes negative), jaw split, 1/3 of tongue removed, free flap from left forearm - 5/23/05; 42 years old at diagnosis
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