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#33559 07-14-2004 04:58 PM | Joined: Jul 2004 Posts: 16 Member | OP  Member
Joined: Jul 2004 Posts: 16 | well driving to columbus oh tomarrow to see a dentist about a prothesis to speak better ...hope i hear some good news i need a boost
i'll let you guys know what happens
keep me in your prayers please ..as you are all in mine
thanks guys
30yr WM ,2003 dx oral squamous cell ca of tongue had lesion removed on lt side of tongue and 9 nodes 1 node pos. had 36 treat. rad therapy 2004 had lesion growing on lt base of tongue had partial glossectomy with skin flap taken from left arm
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#33560 07-14-2004 05:43 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Cowie,
I will certainly be praying for my Aries brother! My birthday happens to be April 7. I hope you get some great news. There is an awful lot a speech therapist can do, too. Be sure and look at that option.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#33561 07-14-2004 11:45 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hey Cowie,
Good luck with the prosthesis. I know that in past posts I've told you how important and helpful speech therapy has been for me (I just "graduated" having my last session this past Monday) and that my prosthesis is a life line for me that I'm forever grateful having it. Keep us posted - I'm anxious to hear how you make out.
Take care,
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#33562 07-15-2004 05:40 PM | Joined: Jul 2004 Posts: 16 Member | | OP Member
Joined: Jul 2004 Posts: 16 | well I saw the dr today and it sounds 50 50 the tip of my tongue not moving makes things hard we took impressions today and in 2wks I go back for a fitting so keep your fingers crossed he wrote me out a script for some heavy duty toothpaste to use so I
30yr WM ,2003 dx oral squamous cell ca of tongue had lesion removed on lt side of tongue and 9 nodes 1 node pos. had 36 treat. rad therapy 2004 had lesion growing on lt base of tongue had partial glossectomy with skin flap taken from left arm
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#33563 07-15-2004 09:57 PM | Joined: Jun 2004 Posts: 17 Member | | Member
Joined: Jun 2004 Posts: 17 | Cowie,
I truly hope and send you many postive thoughts that it will all work out for you. I keep my fingers and toes crossed.
Sweety
Stage 1vb Metastatic Cervical Cancer.
Metastatic squamous neck cancer.
Currently having RT,Chemo. Tumor removed 07/04 Immune therapy.
WHERE THERE'S LIFE THERE'S HOPE.
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