#33421 05-08-2004 06:05 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | O.K. Guys, I`ve just learned an ideal way to deal with anger,,,,,,,,SMASH THINGS...........I was blessed to inherit an ugly ceramic bull dog. I mean spiked collar and everything.........hated it from day one...............so, out he went, his name was Charlie, well now he`s like a thousand pieces, and do I feel better. I`ve hated that dog from day one, I mean he didn`t even qualify for shabby chic.........but Frank`s five foot Indian, who I named Kicking Bird, is off to Alabama with me........I had quite a time dancing around Christmas morning, dancing around with him and trying to get him stood up before Pacer got up............so, I`m trashing bad stuff and keeping the good.......just venting as usual.....................but, I`m finding smashing ulgy stuff is really good therapy........Hugs to All...........Dee | | | 
#33422 05-08-2004 06:53 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Kick some ass Dee!!!!!
Good to vent, We feel so much better afterwords.
Looking forward to the day we meet.!!!!!
Love Ya, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#33423 05-08-2004 07:10 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I have discovered a Road Rage that I didn't have before my diagnosis and treatment. It's amazing the people that have a license this day and age!! Vent away Dee, you deserve it.
Love, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#33424 05-08-2004 07:52 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Minnie, Minnie, yes I will vent, vent. and still vent....................I have developed Maine road rage, if you get in front of me and don`t move. I pass, me and my 3 cylinder car.......My kids are keeping me going, my grandson is having his first vacation.........trying to stay positive, but taking that that awful dog and smashing it was so much fun................Are we demented? No, we are just real people dealing the best we can...........Love and Hugs, Dee | | |
#33425 05-08-2004 08:28 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Well Dee
thank god for electric windows on cars.. much quicker to go down so I can stick my head and one arm out... shout LOUD and a warm gesture.. OH feels so gooood.... so sorry charlie never made the move.. some people will be sooo sad..
love ya
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#33426 05-08-2004 08:31 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Boy do I remember Maine driving!!! You get on those roads and the person in front of you wants to go 25 miles an hour. I remember when I moved here to Virginia I couldn't go anywhere but the store up the street for a few months as the traffic was SO complicated and I was scared to drive in it. I finally found a friend that taught me the ropes to driving around here.
Dee, please say hello to Maine for me. I miss the simplicity of life there and I remember when I was so sick wanting to go "home". I get to spend two weeks there in July and I CANNOT wait as I didn't get to go last summer (was in the middle of radiation, yuck)
Take care Dee and I cannot wait to meet you at the reunion.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#33427 05-08-2004 03:09 PM | Joined: Aug 2002 Posts: 246 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2002 Posts: 246 | Guess you guys haven't experienced B-AH-STON drivers yet!
Kim
kcdc
Wife of Dave,diagnosed with Stage III Tonsillar SCC,August '02
Modified radical neck dissection followed by radiation therapy
'There is glory and radiance in the darkness and to see we have only to look"
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#33428 05-08-2004 04:09 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Oh no, Dallas has the worst drivers in the world. If you aren't going 100, they run you over. I used to think it was the slow pokes causing the problems but they have street racers on the highway in packs, running down motorists and people changing tires. Some guy in an SUV ran over 3 people night before last in HIS neighborhood and set his vehicle on fire to disguise the evidence. Is that dumb or what? I am just now able to drive around and not yell and flash the "international road sign". Minnie, I just can't imagine you with Road Rage! Ed 
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#33429 05-08-2004 06:15 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Ed, it's not a pretty sight but it does happen! Here's a "most embarrassing" road rage moment.
My 18 year old attends Atlantic Shores Christian School and she is by far my most spiritual child. I have two daughters at that school this year. I drive them each morning and one day this mother just pi--ed me off, I can't even remember why. The rage took over me and in the middle of the Christian School parking lot I flipped her the "favorite finger" as my family calls it. Needless to say it took awhile for my daughters to accept my apology...........probably because everytime I would start to apologize I would start laughing! Even a nun would find the humor in that one, at least in my opinion. We laugh about it now and my Kelly blames it on my illness if her friends bring it up to her.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#33430 05-09-2004 12:56 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Kim, don`t even talk about Boston drivers, made enough trips back and forth to Boston Hospitals to last me a life time in Boston traffic.......this is a off the subject, but the day Frank ot is new glasses a guy was looking at him and Frank nodded hello, the guy turned away. On our way out Frank flipped him the bird.Boy, was I proud of him! I was usually the one to stare people down if they looked............Hugs, To All.............Dee | | |
#33431 05-09-2004 05:02 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Dee,
I promise to stay out of your way!!
Don't forget to include the cops that make the Boston roads worse!!! Is it just a coicidence that EVERYTIME there's bad traffic, a cop just HAPPENS to be directing???? I think not!!!
If you're driving by Exit 8 on the Expressway, beep and wave!!
Safe driving!
Sabrina | | |
#33432 05-09-2004 06:27 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | My wife and I fired fully automatic weapons when we were in Vegas. - It was our first trip post Tx. Nothing like a red hot, smoking machine gun to relieve and transfer the anger. Maybe when we're in Vegas we can go the "The Gun Store" and give it a whirl. http://www.thegunstorelasvegas.com/images/rental.htm
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#33433 05-09-2004 10:55 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Ok Gary
Cannot find a flight to Vegas that does not involve robbing a bank first... can I hire a machine gun and rob a casino in Vegas.. can get to meet you all then
Al Capone from the UK
love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#33434 05-09-2004 12:17 PM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Works for me, we`1l all dress up like Elvis, movie ??????. When I get to New Orleans will buy voodoo potions to help..........Get sidecar for broom, and fly that way.............love andgs, Dee.........and one way or another we`ll get you there.............Love and Hugs, Dee | | |
#33435 05-10-2004 04:10 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Gary,
Do they make them with fender mounts? Just for a deterrent, that is!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#33436 05-10-2004 09:35 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | When someone does the stupid driver thing near me, especially honk or flip me the happy finger, I smile wave and think to myself "you might be an ass but I am a cancer survivor" top that! I know they can't hear me think but you'd be amazed what those looks do.  PS I'am all for the full-auto side trip! ED, I thought full-auto meant "ready-to-be-installed-on your-auto"
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#33437 05-10-2004 06:42 PM | Joined: Mar 2003 Posts: 189 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2003 Posts: 189 | Hi all,
First, I'm sorry that I haven't been in touch for awhile. This computer is the Pinto of technology. (Sorry, hated my Pinto!) This machine is more tempermental than I am.
I finally convinced the stupid thing to boot-up today, and had to respond to this thread.
We live in the horrid tri-state area. If you have to go into DC, like my husband does each day, you never know how bad you'll be screwed.
Last week, he was going through town to a Department of Justice job. A cop was directing traffic, but decided in the middle of a light change to try and stop Dennis even though the light was green. The cop proceeded to bang the whole side of my husband's new truck and yell "STOP" Well, Dennis did, after a few choice cuss words, and when asked for his license, got out of the truck and reached into his front pants pocket. (He keeps all important IDs in the front) Instantly, these guys(back-up had arrived by now!---I guess they needed help to land a whopping 135 lb., 5'11" guy!)had him handcuffed and thrown over the hood of the truck!!!!!!!!!!
Once they ran his Federal ID they let him go, but wouldn't admit that they had overreacted. I don't think they took too kindly to the fact that he knew more about traffic control than they did.
We've had a good laugh.....but beware if you are traveling through DC!
Love,
Mandi
PS--We had a guy a few weeks ago here who thought he hit a "deer" on the interstate. He didn't bother to get out and check. Once he drove home and sobered up the next day, he noticed a dead body in the street in front of his house. He had hit a guy changing a tire on the interstate and drug him for over 10 miles.
PLEASE, ALL OF YOU BE CAREFUL...
Husband diagnosed with stage III tonsil and floor of mouth cancer in August 2002. Three rounds of chemo/42 RAD treatments. Upper right lung lobectomy in March 2003. (Benign)
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#33438 05-10-2004 11:07 PM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Jeez, Mandi, what a horrible p.s. Don`t be talking bad about pintos, I had one that got across the country several times, although I traded her in for a pinto lemon. I currently have a 91 geo metro, who is my baby, we`re towing he to Ala, since she`s getting a little elderly....Once down there my soon to be son-in=law artist is going to airbrush her. And being in the south, I can actually put the top down...........Love and Hugs.........BA. | | |
#33439 05-10-2004 11:19 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Look after your baby.. we may need her to do a Thelma and Louise..
Love ya
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#33440 05-11-2004 05:36 PM | Joined: Mar 2003 Posts: 189 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2003 Posts: 189 | Hey!!!! Don't you two forget me when you jump the big void!!!!
Mandi
Husband diagnosed with stage III tonsil and floor of mouth cancer in August 2002. Three rounds of chemo/42 RAD treatments. Upper right lung lobectomy in March 2003. (Benign)
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#33441 05-11-2004 10:25 PM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Well, Hey BBA, do you think we`d forget you ? Actually feel like I`m in a big void most of the time!!! But, we won`t forget ya...........Love and Hugs, BA | | |
#33442 05-14-2004 02:52 PM | Joined: Dec 2003 Posts: 47 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2003 Posts: 47 | Oh Dee....... How I wish I had a ceramic bull dog today!
Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
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#33443 05-14-2004 09:33 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Jeepster
play frisbie with plates... that's good.. take it you are having a bad day?
love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#33444 05-15-2004 03:53 AM | Joined: Dec 2003 Posts: 47 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2003 Posts: 47 | Yes I am! Since we're all family here, I'll go ahead and post the problem. No where can you get straighter answers than right here. I'm dealing with insensitive, negligent medical personel that aren't looking at the big picture. My OWN team... I SPECIFICALLY asked for a peticular screening at my annual physical. I read on this board about it. Well for the first time EVER I turn up with "atypical cells" and I should come back in 3 MONTHS??? WHAT??? Oooops.. and they forgot to run the screening I asked for and they wont do it now for another 3 months.  I'm so scared this could be related to Don's cancer. Did I do this to him???  We've both been completely monogamus(sp?) for over 5 years. Please send all ugly ceramic things to me. Karen
Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
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#33445 05-15-2004 05:17 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Karen
STOP... you are doing what we all do here.. actually we all do it well... YOU are looking for a situation or a person to blame.. you know it doesn't work like that.. If there was one easy answer none of us would be in this sh#t...
try to go over it all.. if they were worried about you.. you would not have to wait 3 months.. and Don's cancer no-way are you to blame... better to blame aliens than yourself...
love hugs and box of plates
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#33446 05-15-2004 06:01 AM | Joined: Dec 2003 Posts: 47 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2003 Posts: 47 | Thanks Helen, Perspective. That's what I need. There's not much I can do about it now. 'Cept maybe throw plates. I think sometimes I read too much but I'm talking about real studies at John Hopkins. They say 80% of us have HPV, and #16 & #18 are the ones related to oral cancer. (It does come with a slightly better prognosis.)I have to get my mind off this for a while... Hey all, Check your e-mails I sent everyone I could on this thread a little stress relief I forgot I had. Turn up the sound. I hope you enjoy.
Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
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#33447 05-15-2004 07:38 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Karen Thanks for mail.. just what I needed.. glass red wine and a laugh.. great... Try not to play the number game.. if 80% have HPV why haven't 79% that's 80% if you include me.. got oral cancer.. who gave it to me CAN I SUE... expect eventualy a connection with a lot of things will be found.. but I will not give up two things.. red wine and ( ok that's the other one) when I'm nil by mouth can I have IV red wine.. hope so.. :rolleyes: love and hugs.. sorry threw the plates Helen..
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#33448 05-16-2004 05:16 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Just got a chance to check out this thread, Hmm, sounds like we might have an organized activity for the Vegas GetTogether--automatic weapons fire. Will have to get the entertainment director to look into this.
Driving.. Folks complaining about Boston etc should try here in S. China. Traffic signals are only a "guideline" as well as lane markers. First thing taught in driver's ed is to fold the rear view mirror UP so it's out of the way, you don't really need it anyway (I'm not kidding). Very common to see traffic going wrong way on divided boulevards. 4 people on a 150cc motorcycle, one an infant usually riding on the handlebars. Traffic flow is not usually all one direction, about 1/3 of the traffic on a street is traveling at a 90 degree angle from the other 2/3, and this isn't at intersections. Since my company's policy is to not let non-local's drive, I just hide in the back seat of my car behind a book or magazine. But a taxi ride is quite an adventure, ala "Mr. Toad's Wild Ride" at Disneyland.
Dumb question, but after having had this "brush with mortality" and surviving, has anyone else hand a penchant for doing things slightly more risky than they would have before hand. Like ok, I've got a 50/50 chance of not being here 5 years from now because of the cancer. But if I jump out of a perfectly good airplane (wearing the "chute" of course) it's statistically safer than living with this disease. So I'm more likely to go ahead and do something silly like skydiving than I would have if I had not gotten cancer. Still not going to jump out of an airplane, but might try driving in Dongguan traffic.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#33449 05-17-2004 10:01 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Bob
Yep I drove in Malta.. whole hotel of men.. and me I hired a car.. the guy delivering it bent it on the way.. me no problem.. I don't have problems anymore.. they are what other people have..so yep lead me to a machine gun.. in the UK every thing is banned.. so if I get to the USA guns are 1st on the list.. can I stand my husband as target... (JOKE).. he's blind and wouldn't duck...
cheers
Helen..
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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