#33346 04-21-2004 12:11 PM | Joined: Sep 2003 Posts: 30 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 30 | Hi,
Looks like I have another recurrance. I went for a chest xray because of a cough I have and they found 2 masses in my right lung. I had a CT scan since then and now I have to go for a biopsy. I know it's not cancer till it is confirmed, but this does not look good. It has only been 7 months since the last reccurance on my tongue.
I have taken myself off the Trental. I am scared and would like to ask for you to keep me in your prayers.
Love Sharon
Right Radical Neck Disection 2/02, 7 wks Rad. rgt side 04/03, 15% of tongue removed 08/03, Lung Met 05/04, lung surgery removed 8 nodules and 4 lymph nodes in chest all SCC
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#33347 04-21-2004 02:09 PM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 153 | hi Sharon,
best wishes and you are in my prayers, big time.
hopefully things will be ok.
cu,
larryb | | |
#33348 04-21-2004 02:32 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sharon,
I am so sorry to hear your news. I have been coughing really bad the past few days, too, and I am so scared to go to the doctor. I have an appointment already scheduled next week and hopefully the cough will be better. I will pray for you God bless you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#33349 04-21-2004 03:55 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Dear Sharon,
Of course you are scared! You and Ed both. You are both in my prayers, count on it and I look forward to good news from both of you!
Love and God bless
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#33350 04-21-2004 05:04 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Sharon,
You are most definitely in my prayers, and hopefully, it will not be cancer. Sometimes it seems like there just isn't a break.
Take care, and get around a great support system...it's what has gotton Dan and I through so far!
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#33351 04-21-2004 11:00 PM | | Anonymous Unregistered | | Anonymous Unregistered
| Sharon & Ed, (Ed glad you are going to check it out)
Please both of you keep us imformed about the results of your tests. And after discussions with your docotors, please remember there are also many different clinical trials for SCC cancers.
My thoughts and prayers are with you both,
Dinah | | |
#33352 04-22-2004 01:43 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Dearest Sharon, you are in my prayers. God Bless You, Keep Looking Up!!!!!!!!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#33353 04-22-2004 01:44 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Ed, my thoughts and prayers are with you, too! God Bless You!!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#33354 04-22-2004 02:03 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Certainly in my prayers also, Sharon. And like a lot of us on the Board that make me so angry.We all fight so hard, we spend some time thinking we`ve won, only to find out that it was just one battle and not the war. And as far as being scared we all know that fear seems shadow us wherever we go.........Hugs and prayers.........there are lots of us here for you.............Dee | | |
#33355 04-22-2004 02:40 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Sharon
Seems sometimes the road goes round in circles.. but somewhere on that road we are all traveling with you..
Love hugs and prayers
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#33356 04-22-2004 06:50 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Sharon-
Bummer.. I will add you to my growing prayer list and you too Ed. Sometimes it is hard to look up when your heart is heavy with fear. That's what we are here for....to hold you up! Know we are all out here with you in this fight! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#33357 04-23-2004 12:36 PM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Wow! Sharon, my heart really goes out to you. I'm in the same situation, but mine is for sure cancer. I am done with treatment, I am so tired of this. I have been dealing with leukoplakia for about 15 years, and have never smoked. It finally turned to the dark side 12/02, reoccurred 7/03, and 4/04. My cancer is really agressive.
I will pray that yours is not.
I didn't know about your cough Ed. It could be from all the high winds here in Dallas. Love this spring!
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#33358 04-23-2004 03:59 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I just found out my sister-in-law has leukoplakia lasered off of her tongue a couple of weeks ago and the oral surgeon told her to not worry about it. She emailed me the path report and it clearly said "dysplasia, mild, with hyperkeratosis" and recommended removing any lesion that was not removed and very close long term follow up. That seems a bit more than don't worry about it. I know I am a bit paranoid but I pushed her towards seeing an ENT that has significant experience treating oral cancer for follow up and a second opinion. My fear is that they did not confirm clear margins and don't have the required knowledge to properly diagnose her. Anyway, she has an appointment Monday to at least calm my fears.
I'm sure my cough is just some of the bugs going around here. I hope I didn't worry anybody.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#33359 04-24-2004 10:10 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Ed,
This is just how my cancer started. She should definately seek a second opinion and seek something preventative. I tried vitamin A for about 2 years, but that didn't help. I think there are some other vitamin A derivitives like Accutain, but she can not get pregnant. I think MDACC has something. Brett may know about it too.
Let us know the update.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#33360 04-24-2004 07:40 PM | Joined: Dec 2003 Posts: 47 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2003 Posts: 47 | Sharon & Ed...Please know you are ALWAYS in my prayers... as so many have been answered now I don't stop praying! I use it like Don uses his nurse button...Need some help? Say a prayer (It works better than the nurse button!)
Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
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#33361 05-07-2004 03:15 AM | Joined: Sep 2003 Posts: 30 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 30 | Hi Everyone,
Thank you so much for all your prayers. Yesterday I got confirmation about the lung biopsy and surprise surprise it is Squamous Cell Carcinoma, same as my tongue and neck. There is a big mass on my right lung and a tiny mass on my left lung. So I am being sent for a bunch of tests to determine if the cancer has spread anywhere else. I have a bone scan next Thursday, a CT scan of abdomen next Saturday and waiting to hear about the date for a brain MRI.
If all the tests show the cancer has not spread, they will operate on both lungs since I am only 41 and in good shape. If they do find something, they will not operate.
So now I am hoping for a lung operation, Wow, what a thing to hope for!
In March I started a course to be a Registered Holistic Nutritionist. We just finished Anatomy and Physiology which was interesting, but now we are into Preventative Nutrition and it is very difficult for me to sit there and listen when they talk about cancer stuff. I am thinking of quitting school, it is too hard listening to all that now.
Love Sharon
Right Radical Neck Disection 2/02, 7 wks Rad. rgt side 04/03, 15% of tongue removed 08/03, Lung Met 05/04, lung surgery removed 8 nodules and 4 lymph nodes in chest all SCC
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#33362 05-07-2004 04:03 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Sharon,
We are all praying for the best news possible under the circumstances. As Helen said, you're not alone on this road.
I'm stealing from Dee's sign off and sending much love and many hugs,
Sabrina | | |
#33363 05-07-2004 04:04 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Sharon-
I am so sorry to hear those results. My heart and prayers go out to you and your family. We will all hope for more negative results with you, too! Don't you give up hope! We are in this with you! Love - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#33364 05-07-2004 04:20 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Dearest Sharon...I am so sorry to hear those results. I am praying for lung surgery for you and all will be fine....At times like these, I wish we lived closer and could meet up face to face!!!Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#33365 05-07-2004 04:25 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Sharon
right lady.. you stay strong and positive now.. we both have to get sorted for this reunion..I have made it my aim to be there so want to see you there too..
prayers love and big hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#33366 05-07-2004 04:50 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Dearest Sharon, remember holistic is body, mind and spirit..........you keep fighting Girl, we`re all right here with ya..........Here`s hoping for lung surgery, what a crappy thing to look forward to !!!! Love, prayers, and Hugs, Dee.........planning to see ya in Vegas | | |
#33367 05-07-2004 04:55 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Sharon,
Sending you love and prayers and hoping they can operate on your lungs.
Love,
Danielle
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#33368 05-07-2004 05:28 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sharon,
I am really sorry to hear your news. My heart goes out to you right now. We will all face this together...even though we may be miles apart. I will pray for you daily and I hope for every success on the lung operation possibility.
Love and Hugs to you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#33369 05-07-2004 05:54 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Sharon,
Sorry to hear. You are in my prayers.
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#33370 05-07-2004 08:51 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Sharon,
I can't believe it!!! I am exactly where you are. I am 40 and have 5 lung mets, so surgery was not an option for me, but I am praying it is for you.
Were your lymph nodes negative? Mine were and I still got lung mets. Apparently they forget to tell you that these little cancer cells can travel through the blood stream too.
I too am praying for good news on all your other tests. Look on the internet for Iressa and read up on that. Take one thing at a time and don't look too far down the road.
We're here for you.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#33371 05-07-2004 08:53 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Sharon,
I hope the exclamation points I used didn't throw you off. When I said I couldn't believe, I was upset, because I prayed so hard that it would be cancer. No I'm not excited that there is one more soul who has to deal with more bad news.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#33372 05-07-2004 09:31 AM | Joined: Sep 2003 Posts: 30 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 30 | Thanks for all your wonderful replies and your prayers, I will stay positive and get thru this because I am going to Vegas!! It is something that will keep me going, I can't wait to meet everyone. I feel so much better now that I have this support and I am not going thru this alone.
Thank you!
Lynn,I am sorry to hear about your mets. Yes, my lymph nodes removed from my neck where negitive, this cancer travels. It seems like yours is really on the move since your surgery was only in Nov and radiation was just this year. Thanks for the good advice, I will take one day at a time. I will pray for you too.
Love Sharon
Right Radical Neck Disection 2/02, 7 wks Rad. rgt side 04/03, 15% of tongue removed 08/03, Lung Met 05/04, lung surgery removed 8 nodules and 4 lymph nodes in chest all SCC
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#33373 06-12-2004 04:17 PM | Joined: Sep 2003 Posts: 30 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 30 | Hi Everyone,
Your prayers must be working! I have been thru the ringer but they didn't find any other cancer therefore I get to have the Lung Surgery. It is scheduled for June 23. I am having a Thoracotomy where they are going to cut under my right arm and get the tumor out thru my ribs. I can hardly lift my right arm due to the right neck disection, but I guess they will figure it out.
Won't know until after the surgery whether I will get chemo or radiation.
A real bummer is that I have a team of 10 friends that were joining me for the Relay For Life on June 25. I'll be in the hospital but my friends will be there walking all night for me. They are going to tape the entire event for me so I won't miss anything. I will be there next year!!
Sharon
Right Radical Neck Disection 2/02, 7 wks Rad. rgt side 04/03, 15% of tongue removed 08/03, Lung Met 05/04, lung surgery removed 8 nodules and 4 lymph nodes in chest all SCC
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#33374 06-12-2004 04:54 PM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Sharon, I never thought I'd be telling someone that it's great they'll be having surgery, but......... that's great! I'm so glad they didn't find mets anywhere else. Be seeing you in Vegas! Double rainbows & hugs,  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#33375 06-12-2004 05:31 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sharon,
I am sorry you have been put through the ringer. It has been quite a while since you were here and I was hoping for the best. I am happy to hear your news even though I am still saddened by it. I will continue to pray for more miracles and healing for you!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#33376 06-13-2004 12:05 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Sharon: Good news. No other cancer and this one is operable. Sorry about the additional discomfort, but hang in there and let the Dr.'s do their thing. Will be praying for a successful surgery and the Lord's guidance to the Dr.'s
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#33377 06-13-2004 05:14 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Sharon,
Here's hoping you sail through your surgery. Sorry you have to endure additional treatment.
I'll be praying for a fast and complete recovery.
See you in Vegas, Danny Boy!
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#33378 06-13-2004 08:21 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Sharon,
Thanks for the update! I'm so excited for you that I am crying right now that you have no other mets. I hope the surgery and recovery are both minimal. I'll be praying for the doctors and caregivers who'll be looking after you.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#33379 06-13-2004 09:54 AM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hi Sharon,
Sounds funny to say Great News to having another operation but in this case I guess it's the right thing to say. Keep your spirits up and positive thoughts flowing - I'll be pulling for you all the way and my prayers, along with everyone else, will be loud and clear!
Hang tough! Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#33380 06-13-2004 11:48 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Sharon,
I'm very happy for you and hope the surgery will be the last you have to deal with.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#33381 06-13-2004 11:59 AM | Joined: Sep 2003 Posts: 30 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 30 | With everyone saying "Great News" I guess I need to start looking at it that way too. Thanks!
Lynn I pray your lung mets all will all disappear without surgery. I think of you often and I know how tough it must be and you are so supportive to everyone including me. I'm pulling for you.
I just got an email from my friend Jen, that I met from this very site and she is coming to Vegas with me! Both of us had tongue cancer at the same time last year. It's something to look forward to so I'll have a quick recovery.
I think it was Ed that said it is just another walk in the park.
Love Sharon
Right Radical Neck Disection 2/02, 7 wks Rad. rgt side 04/03, 15% of tongue removed 08/03, Lung Met 05/04, lung surgery removed 8 nodules and 4 lymph nodes in chest all SCC
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#33382 06-13-2004 12:01 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Carol,
I was so happy to hear that they found the stitches and it was nothing serious!! Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#33383 06-13-2004 01:22 PM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | Sharon,
That was my "walk in park", we seem to use that term quite a bit on here. I had the surgery 5/6/04 and it was not bad at all. I was only in for 2 nights. Mine was video assisted and I ended up with 4 small incisions, one of which was for node biopsies. I may be looking at more invasive surgery for the other lung, but this one was easy. Oh, I too felt luck when they told me I could have surgery. Surgery, good news, go figure!
Good luck,
Glenn | | |
#33384 06-14-2004 12:39 PM | Joined: Sep 2003 Posts: 30 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 30 | Glenn,
I'm sorry, I should have looked back on the post. I want to Thank you because that little remark as helped me make it through the last few weeks. I think my surgery is going to be more intense than you mentioned, but it will still be a "walk in the park".
I have everyone here praying for me so surgery will be successful and I will hear about those Clean Margins!
Sharon
Right Radical Neck Disection 2/02, 7 wks Rad. rgt side 04/03, 15% of tongue removed 08/03, Lung Met 05/04, lung surgery removed 8 nodules and 4 lymph nodes in chest all SCC
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#33385 06-16-2004 12:22 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Sharon,
I am truly sorry you have to endure more treatment to rid yourself of this bastard we call cancer.
Hoping the surgery goes well and you are back posting in no time.
Looking forward to seeing you in Vegas!!
God Bless You, Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#33386 06-17-2004 05:22 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Sharon,
You're in my thoughts and prayers.
D
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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