#33366 05-07-2004 04:50 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) |  Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Dearest Sharon, remember holistic is body, mind and spirit..........you keep fighting Girl, we`re all right here with ya..........Here`s hoping for lung surgery, what a crappy thing to look forward to !!!! Love, prayers, and Hugs, Dee.........planning to see ya in Vegas | | |
#33367 05-07-2004 04:55 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Sharon,
Sending you love and prayers and hoping they can operate on your lungs.
Love,
Danielle
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#33368 05-07-2004 05:28 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sharon,
I am really sorry to hear your news. My heart goes out to you right now. We will all face this together...even though we may be miles apart. I will pray for you daily and I hope for every success on the lung operation possibility.
Love and Hugs to you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#33369 05-07-2004 05:54 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Sharon,
Sorry to hear. You are in my prayers.
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#33370 05-07-2004 08:51 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Sharon,
I can't believe it!!! I am exactly where you are. I am 40 and have 5 lung mets, so surgery was not an option for me, but I am praying it is for you.
Were your lymph nodes negative? Mine were and I still got lung mets. Apparently they forget to tell you that these little cancer cells can travel through the blood stream too.
I too am praying for good news on all your other tests. Look on the internet for Iressa and read up on that. Take one thing at a time and don't look too far down the road.
We're here for you.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#33371 05-07-2004 08:53 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Sharon,
I hope the exclamation points I used didn't throw you off. When I said I couldn't believe, I was upset, because I prayed so hard that it would be cancer. No I'm not excited that there is one more soul who has to deal with more bad news.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#33372 05-07-2004 09:31 AM | Joined: Sep 2003 Posts: 30 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 30 | Thanks for all your wonderful replies and your prayers, I will stay positive and get thru this because I am going to Vegas!! It is something that will keep me going, I can't wait to meet everyone. I feel so much better now that I have this support and I am not going thru this alone.
Thank you!
Lynn,I am sorry to hear about your mets. Yes, my lymph nodes removed from my neck where negitive, this cancer travels. It seems like yours is really on the move since your surgery was only in Nov and radiation was just this year. Thanks for the good advice, I will take one day at a time. I will pray for you too.
Love Sharon
Right Radical Neck Disection 2/02, 7 wks Rad. rgt side 04/03, 15% of tongue removed 08/03, Lung Met 05/04, lung surgery removed 8 nodules and 4 lymph nodes in chest all SCC
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#33373 06-12-2004 04:17 PM | Joined: Sep 2003 Posts: 30 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 30 | Hi Everyone,
Your prayers must be working! I have been thru the ringer but they didn't find any other cancer therefore I get to have the Lung Surgery. It is scheduled for June 23. I am having a Thoracotomy where they are going to cut under my right arm and get the tumor out thru my ribs. I can hardly lift my right arm due to the right neck disection, but I guess they will figure it out.
Won't know until after the surgery whether I will get chemo or radiation.
A real bummer is that I have a team of 10 friends that were joining me for the Relay For Life on June 25. I'll be in the hospital but my friends will be there walking all night for me. They are going to tape the entire event for me so I won't miss anything. I will be there next year!!
Sharon
Right Radical Neck Disection 2/02, 7 wks Rad. rgt side 04/03, 15% of tongue removed 08/03, Lung Met 05/04, lung surgery removed 8 nodules and 4 lymph nodes in chest all SCC
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#33374 06-12-2004 04:54 PM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Sharon, I never thought I'd be telling someone that it's great they'll be having surgery, but......... that's great! I'm so glad they didn't find mets anywhere else. Be seeing you in Vegas! Double rainbows & hugs,  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#33375 06-12-2004 05:31 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sharon,
I am sorry you have been put through the ringer. It has been quite a while since you were here and I was hoping for the best. I am happy to hear your news even though I am still saddened by it. I will continue to pray for more miracles and healing for you!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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