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#29882 - 10/24/06 09:55 AM Re: Long Time Survivors
Plastics Dave Offline

Registered: 02/10/05
Posts: 14
Loc: Gloucestershire, England
Hi...I won't bore you by writing it all again I did it under the thread "I can talk and I can sing"..15 years this November and going strong, I don't know the secret but a sense of humour certainly helps as does this forum with good people to talk to who you know actually understand what you are trying say. Good Luck coz you will need some occasionaly and best wishes coz you will need them on the black if you want to swap plates sometime just to see how someone else feels let me know....
Regards to everyone.
Gone sailing.

#29883 - 10/24/06 03:18 PM Re: Long Time Survivors
Carol L Offline
Patient Advocate (1000+ posts)

Registered: 01/13/04
Posts: 1116
Loc: Baltimore, Maryland
Hey Dave, wonderful to hear from you, thanks for your post......WOW, 15 years, that is wonderful!!!!Take Care and keep that sense of humor going! Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---

#29884 - 12/02/06 09:52 AM Re: Long Time Survivors
Trinlif Offline

Registered: 12/02/06
Posts: 2
Loc: Colorado Springs
By way of a bump, to add to the topic and in order to introduce myself: I celebrated 15 years of survivorship in March 2006. I'll post the entire story if y'all think it may help others (it has through advocacy and local survivorship programs in the past 15 years, no doubt).

Just found this site and board yesterday and look forward to being part of this community.

Best to all and remember to accentuate the postitive,
Kathy M
SCC Stage IV, base and rear of tongue. Ressected 2/3 of tongue 3/14/91, flap implant at UCLA Medical Center. 36 radiation treatments and all clear since then.

#29885 - 12/02/06 10:15 AM Re: Long Time Survivors
davidcpa Offline
Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8311
Loc: Gulfport, Florida

Welcome and we're glad to have you.

I'm sure your story will be interesting, especially since your now 15+ yrs out. Lets see, I'll be 73, hopefully retired and worry free. I'll take that !!

When you share your story please start your own Post so that complete attention can be given to it.

Again, welcome aboard.

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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