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#2925 07-06-2004 10:57 AM
Joined: May 2002
Posts: 2,152
Eileen Offline OP
Patient Advocate (old timer, 2000 posts)
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Joined: May 2002
Posts: 2,152
I'm probably not the one who should be asking this since I'm still not certain I can attend(parent problems), but I was wondering if you are planning to have any sessions at this conference on Saturday. The notice indicated that nothing was planned, but I don't know if that means you don't intend to plan sessions or that you just haven't picked the topics.

We have a lot of patients on this forum whose caretakers and family are not and visa versa. I think it would be a golden opportunity for our other halves to benefit from what we all have derived from this forum. I also think holding a general session with everyone would be beneficial. I was amazed when I mentioned this conference to my hubby, that he sounded enthusiatic about going. He doesn't use the computer but the few caretaker things I have printed off for him he really appreciated.

Just my thoughts. What do other attendees think?


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
#2926 07-06-2004 03:44 PM
Joined: Nov 2002
Posts: 458
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Posts: 458
Hi Eileen,

Whilst we're trying to keep this "light" and not too intense, it's natural to maybe want to cover some of the nagging subjects. Thing to remember is this is actually a gathering of posters on the OCF board done independently of the actual Oral Cancer Foundation itself. Brian is planning on attending of course, but other than giving permission to use the BB to promote the event, giving ideas for activities and helping to get items for auction, he's not officialy sponsoring the event so to speak.

At this point we hadn't planned any formal lecturers, breakout sessions, etc. We can put some things together, as far as separate group sessions as far as garegivers separate from survivors/patients, but I don't know that we'll have any trained moderators on hand.

We'll put some though into this. Appreciate the suggestion, I would like attendees to have a nice positive experience.

Bob


SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
#2927 07-06-2004 03:56 PM
Joined: Jul 2003
Posts: 1,163
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Joined: Jul 2003
Posts: 1,163
Hello JETAGEHOBO & Eileen,

Good idea Eileen!

I don't know if the agenda is going to be very formal or structured. I would think after dinner we would like to hear some speakers. Brian would be one for sure. Also I'd like to hear Ingrids view on the lifestyle Brian has chosen. I have alot of questions to ask many members.

Gary always has the most informative posts I read. I am saving alot of hugs for to many members to mention here.

See You Soon: Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#2928 07-07-2004 02:58 AM
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Bob is right in the reminder that this is a gathering of members and breakouts would be hard to accomplish. Expense is also an issue. Beakout rooms cost money for each room.

We will work to see what we can put together with the one room we have booked for most of Saturday.

Take Care,
Dinah

#2929 07-07-2004 07:00 AM
Joined: May 2002
Posts: 2,152
Eileen Offline OP
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
When I said 'sessions', I didn't mean formal speakers. I thought we might do something like the following:

A Free-for-all for everyone - discuss whatever comes to mind - like ways ot get the word out about oral cancer. Then break into two groups- one for caretakers and family and one for patients where they could discuss their specific issues.

Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I

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