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#29015 05-09-2007 12:44 PM
Joined: Apr 2005
Posts: 2,676
JAM Offline
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
Dear MP, just to alert you to further possibilities eek [sorry], when John was on strong meds, he had "visitors" in his bedroom as well as nightmares. He would tell me about them in full detail later. The combination of stress, fear and powerful drugs will do a number on your mind. Amy in the Ozarks


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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#29016 05-09-2007 02:19 PM
Joined: Mar 2007
Posts: 525
"Above & Beyond" Member (300+ posts)
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"Above & Beyond" Member (300+ posts)

Joined: Mar 2007
Posts: 525
I have not given much thought to my sleep problem, as I thought it was the least of my worries. This thread is making me take a closer look, as it could effect my overall health (strength) as I enter treatment. And Wayne's is over a year old. Althought I know a sleep med will take care of this. I strongly feel taking too many meds can cancel out each others intened affect and create new problems. I see many seniors taking over 15 pills a day and I just know this is not good. That is why your pharmacist should be aware of all yours drugs, especialy when multiple doctors are employed.

Here is my "nieve" question of the day. Per Davids response, what or where is (PMID 15984916)?
Thank You, Petey


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
#29017 05-09-2007 03:27 PM
Joined: Jan 2007
Posts: 735
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jan 2007
Posts: 735
I dont sleep ..I dont know if i have nightmares when I do but i have bad dreams ..I am on lorab and I can take them and sleeping pills and still be awake at 6 am ....this disease in my mind is more then just physical!


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#29018 05-09-2007 11:15 PM
Joined: Apr 2007
Posts: 64
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Apr 2007
Posts: 64
I had my surgery one year ago and sleep now is in short supply. It is in the night that my mind wonders where in the daylight I don't allow it to go. I don't take medication, but I use lavendar oil on my pillow and fall asleep with calming music, it helps me fall asleep but not stay asleep. I try to enjoy all of my waking hours, so when I cannot sleep I get up and do something else that I enjoy.
I just recently got a mouth guard for my lower teeth and it helps me a bit, seems I was chewing on my tongue when I was sleeping and waking up with more discomfort than usual and also hurting myself and creating hyperplasia along the left side of my tongue, the numb side. The applicance has been very helpful.


Adele,
mucoepidermoid carcinoma of the submandibular gland, 05/06, left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo,
11/07 surgical biopsy of lymph node left neck, no cancer!
#29019 05-10-2007 02:29 AM
Joined: Mar 2007
Posts: 26
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Mar 2007
Posts: 26
I have also experienced sleep problems since surgery. I have never had a problem falling asleep however, now it takes several hours to fall asleep and sometimes I just don't sleep at all. I took Ambien for awhile which helped me fall asleep but, did not keep me asleep. I could only stay asleep for 3 hours so, I don't take any meds for it now. Things have gotten better. I am now falling asleep better but, I still only sleep 3 to 4 hours. Part of the problem is the dry mouth. I drink so much water that I normally get up 3 to 4 times a night to go to the bathroom. I guess it's like a "catch 22." I am so tired by the end of the day, I have no problem falling asleep.


11/28/2006. Left lateral tongue, partial glossectomy, T3, moderately differentiated. 12 lymph nodes from neck, all clear. IMRT, 30X, ended 02/21/2007.
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