#28976 05-01-2007 10:08 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello My Friends
The Medical Director of Wellington Regional Hospital called me today. He wants me to come in tomorrow at 10:00 am and get a PET / CT. Then we will meet with the Hospital's CEO, a Pathologist, MO, and RO, and discuss a "plan of attack". All service's will be PRO BONO. I definitely will bring up the relatively new procedure of moving the saliva gland(s). I must point out the fact that the Health Care District of Palm Beach County HAD ABSOLUTELY NOTHING TO DO WITH THIS! :rolleyes:
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#28977 05-01-2007 10:16 AM | Joined: Apr 2007 Posts: 12 Member | | Member
Joined: Apr 2007 Posts: 12 | Hey PeteyB my doc will place one saliva gland under my chin so that they can radiate from both sides. I did do a search on this and found noting. Coul it be that it is that new? Good luck and you can contact me if you need more info. I my self can't wait to get going and kick cancers a**..
squamous cell carcinoma STAGE3
T2N1MO
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#28978 05-01-2007 11:01 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Thanks Randy. I have never heard of it, but hey, I never heard of tongue cancer till I got It. I even put a post in the General Board titled Getting radiation soon? READ THIS! It refers people to your post. Dry Mouth aka fried saliva glands has been one of the worst side affects of radiation. I pointed your post out to the administrators here. Yes, I'm waiting for the bell of round 1 also. I wish it could be a first round knockout, but I believe were gonna go 15. You have no signature, but I beleive your tonsils were effected. I do not know if moving the glands is appropriate for me, but if they can do it, I'm in. Good Luck to you also. I'm sure we will "type" again.  Petey
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#28979 05-01-2007 12:50 PM | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | Petey,
Good luck tomorrow. Let us know when and how treatment will proceed. We're all rooting for you.
Rob
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
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#28980 05-02-2007 09:02 AM | Joined: Apr 2007 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2007 Posts: 93 | Petey,
I'm glad you are finally getting the treatment and services you need. Hope all goes well for you, you'll be in my thoughts. Amiofostine injections are suppose to help with the dry mouth situation after radiation is completed. It's a shot they give you before each radiation treatment, it has to be injected in fatty tissue. Does cause vomiting with some, in fact my sister could only tolerate it for 3 weeks, then quit taking the injections. Your radiologist can prescribe medication to be taken before you arrive for treatment to deal with the nausea.
Good luck to you and take it a day at a time.
Nancy
Caregiver to sister Connie, dx 2005, scc tongue, 4 surgeries inc. radical left side neck dissection 7/06, 35 IMRT, and 7 cisplatin 2/07, passed away 8-11-07, 51 yrs. young, fought with courage, strength and grace, found peace on her new journey.
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#28981 05-04-2007 06:35 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 |
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#28982 05-04-2007 10:56 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Thanks Gary, I'll print a few copies.
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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