#28951 04-30-2007 02:48 PM | Joined: Apr 2007 Posts: 11 Member | OP  Member
Joined: Apr 2007 Posts: 11 | Thank you all for your support,i know its not confirmed but i think the waiting is the worst espeacialy when times so importent, im in nys and i think there ONE of the worst for people w/out medical
sarah kilbara
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#28952 04-30-2007 05:14 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | SARAH,
I to am in upstate NY and My Dr is at st clairs ..the BEST around I swear I owe him everything..I dont know about the abcess thing I would see a dentist for that personally ..but the white ulceration on your tongue !!God that is what I had ..and it was cancer..until you have it checked you wont know..They dont really want us posting DRS names on here , but if you want the name of a Dr in schenectady ( ENT) who Deals with this Just email me or Pm me ..MY Dr does and believe me I was nervous ..He has worked at sloan kettreing in manhattan and he is absolutley wonderful and amazing and compassionate and there anytime day or night I can't even say enough about this man or any of his collegues ..right now I am there youngest Pt but I think we all know the numbers are growing,PLEASE CONTACT ME !!!!! I AM sort of in your area 45 min...I am outside of amsterdam up on the sacandaga lake ! But I Dr in schenectady !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#28953 04-30-2007 05:27 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | sarah
By the way ..I will do all i can to help you get coverage ..i am pretty famialr with all the insurance options avail to those with no ins ( i used to screen for ins and sign pts up for ins for a medical office and ..I will go to the press or anyone I have to to help you in this I promise ..so Get in touch with me , I am soo close to you and I dont wanna see you go with out ..NOt to mention all Dentist should be able to screen !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#28954 04-30-2007 05:35 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hey Sharlee
Glad to see your feeling better. Why not send Sarah a PM. I'm sure she has never used it and this will "break the ice" so to sprak. Sharlee, do you think he might see her probono? She really needs to know and the stress, I'm sure, is setting in.
Sarah
I, Petey, am sending you a PM (private message). You will see a small message by the "log out" button. Click it and then you answer just like you are posting. The only difference is only the two people using it can view it. Petey
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#28955 05-03-2007 12:41 PM | Joined: Apr 2007 Posts: 11 Member | | OP Member
Joined: Apr 2007 Posts: 11 | well im now having difficulty swallowing and i have a small bump in the top half of my throat and i still cant find anyone to help me, my mom was gonna try to help but wasnt able so i guess i wait till july
sarah kilbara
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#28956 05-03-2007 02:48 PM | Joined: Apr 2007 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2007 Posts: 93 | Sarah,
Do not wait until July, please take everyone's advice and Sharlee's offer of help and get checked out. My sister also had the white area on her tongue and it was SCC. Her dentist has been keeping an eye on it for years, as the biopsy had come back inconclusive. Finally when it started causing her much pain another biopsy was performed and then surgery. You need to get this checked out NOW, please do not wait, if it is cancer it will get worse quickly. My sister had good care, she's a dental hygienst, but has been fighting this cancer for over 2 years.
Please do not delay getting these issues checked out, and be vigilant in doing so. I hope you have family or friends who can help you.
Nancy
Caregiver to sister Connie, dx 2005, scc tongue, 4 surgeries inc. radical left side neck dissection 7/06, 35 IMRT, and 7 cisplatin 2/07, passed away 8-11-07, 51 yrs. young, fought with courage, strength and grace, found peace on her new journey.
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#28957 05-04-2007 03:14 PM | Joined: Apr 2007 Posts: 11 Member | | OP Member
Joined: Apr 2007 Posts: 11 | who do i call for a free cancer screening??? If i go to the hospital and tell them i need one would they do it? my tounge is starting to get numb and hurt and swollin and ive been unexplainably tired. maybe its stress i just dont know
sarah kilbara
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#28958 05-05-2007 08:18 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hey Sarah I really do not know...If you go to the hospital emergency and say you can't swallow they may take you. I SAY MAY...this really sucks. Hey, check your PM. I sent one 2 days ago. Did you ever talk with Sharlee? Let us know. I will look back hear in a few hours. Petey My E-mail is: [email protected]
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#28959 05-09-2007 03:31 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | OK I am posting this here as well as in a PM ... My Dr will see u and work somthing out as well as my dentist who has the velscope !!!!! You have great opportuntiy here !! He also will work somthing out .. My advice and If I am wrong please correct me ...I would do velscope 1st. SO GET A HOLD OF ME ON HERE >>>> I CAN even bring you if you dont have a way or dont want to go alone !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Give me your # or get ahold of me and I wll give you mine !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#28960 05-09-2007 08:44 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello Sarah
I hope you see this and read the above post from Sharlee. Check you PM, and call her.
Sharlee
Good Job! I just hope Sarah sees this. She has not posted in 3 days, and I also sent her a PM 3 days ago. She never replied.
Sarah, This Is A Great Opportunity to get the HELP you need....Please call Sharlee...
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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