#28920 04-25-2007 05:45 AM | Joined: Apr 2007 Posts: 6 Member | OP  Member
Joined: Apr 2007 Posts: 6 | Hi, I'm Dee, new to message board... Going to doc tomorrow for oral cancer screening... I'm really shook up over this situation...I feel sick today, I really don't know what to think... Just confused and frightened. | | |
#28921 04-25-2007 06:02 AM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Dee -- We have all been there, done that, got the T Shirt. In 2004 I was here feeling exactly as you do now. No cancer then, but surfaced a few years later. Maybe a misdiagnosis, maybe not. Really doesn't matter.
As others will tell you, it's not cancer until the pathologist says it is. Even then, treatment options and efficacy are vastly improved. Sooner you find out, the sooner you can attack it.
Use this site, as the support is great, but do not freak out because of statistics and horror stories that you read. Lots and lots of folks with successful treatment and long term survival do not post on sites like this.
Best of luck and we are all here for you.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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#28922 04-25-2007 07:47 AM | Joined: Apr 2007 Posts: 6 Member | | OP Member
Joined: Apr 2007 Posts: 6 | Thank you Jeff, I had a good friend named Jeff is S.C. years ago, air force... I'm going to maintain my cool. My bad spot is on the back of my tongue... No bleeding or any thing, just wierd, kind of like swollen taste buds... Any way, I'm going to maintain a sense of humor about this next mental challange... I'm glad I have some one to communicate with that's had the scare and survived this illness. Thanks again , Dee | | |
#28923 04-25-2007 09:01 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Dee,
You didn't mention WHY you were going to get an Oral screening and what type of doc you were going to? Please keep us posted and don't jump to conclusions.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#28924 04-25-2007 09:54 AM | Joined: Apr 2007 Posts: 6 Member | | OP Member
Joined: Apr 2007 Posts: 6 | Hi David, I'm going to a dentist tomorrow, I have lumps on the back of my tongue... I believe the dentist is the first place to start and then if I need to be referred to have further tests run to see what it is, he can help get things going...That's about all I know to do right now... Dee | | |
#28925 04-25-2007 10:33 AM | Joined: May 2006 Posts: 137 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2006 Posts: 137 | Dee,
If you suspect cancer, please go to an ENT (Ear, Nose, Throat) doctor. The only way to verify or exclude cancer is by way of biopsy and pathology. A visual exam simply won't do it.
dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
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#28926 04-25-2007 11:43 AM | Joined: Apr 2007 Posts: 6 Member | | OP Member
Joined: Apr 2007 Posts: 6 | | | |
#28927 04-25-2007 01:29 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Dee,
It's great that you are being proactive and getting your tongue checked tomorrow. It isn't unusual for someone to notice something that has been in their mouth or on their tongue forever and think it is new.
What you may be seeing are the circumvallate papillae that are far back on the tongue and are normal. They form a "V" on the back top of the tongue, with the point in the middle going back. I'm not saying that this is what you are seeing, however there is a good chance that it is. No one can tell you without looking.
I hope to see you post tomorrow that everything is OK.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#28928 04-25-2007 01:57 PM | Joined: Apr 2007 Posts: 6 Member | | OP Member
Joined: Apr 2007 Posts: 6 | HI Jerry, yes that is kind of what it looks like, I'm not sure what it is but, I must say no matter how this thing turns out I'm glad I found this site... YOU are all such an awsome inspiration to any person facing any advirsity in life. A scare no matter how minor sends you into a zillion horriable " what if's ". I am amazed by the honesty and concern displayed by evey one that shares their experinces on this site, Thank you , Dee | | |
#28929 04-26-2007 02:29 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Dee,
Let us know what the dentist says.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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