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#28708 03-29-2007 06:21 AM
Joined: Mar 2007
Posts: 525
PeteyB Offline OP
"Above & Beyond" Member (300+ posts)
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"Above & Beyond" Member (300+ posts)

Joined: Mar 2007
Posts: 525
Hello everyone! I NEED SOME ADVISE,PLEASE....
Still fighting to get my "emergency medicade".
I think I have found a solution through a program called Project Access. (3 rings & a voice) smile
Here is my problem...
My GP called this morning and said that Palm Beach Cancer Institute called them and said they were returning my biopsy slides as they do not "read" them there??? confused
My appt. is 4-2-07 and $800.00, and they are to stage my cancer and Dx & Tx I suppose.
But now this, They Don't Read Slides???
I'm really at a loss here, and need to know if maybe I'm going to a Food Store for a Haircut????
THEY, and I repeat, THEY are the ones who asked me for the slides.
I'm going to call again now, as everyone was at lunch at noon.(not a good sign) and confirm this.
Then I'm gonna see if they are listed on www.quack.com PLEASE ADVISE!
I hope you can forgive me, but this is getting way too comical. And humor is "my way" of handling it. I breakdown and cry sometimes when I'm alone.
Anyway my Cancer Fight Song is "Welcome TO My Nightmare" by Alice Cooper (perfect lyrics) cool
Impatiently awaiting YOUR THOUGHTS.
Love and Prayers to All...PeteyB


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
#28709 03-29-2007 07:15 AM
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
Sounds like these folks are OUT TO LUNCH even when they aren't on their lunch hour. If they don't read the slides, why are they not sending them to the folks that do read the slides? On second thought, your appt at hospital is so close, they would probably lose them.

Keep your sense of humor. You will need it to get through this.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
#28710 03-29-2007 02:56 PM
Joined: Feb 2007
Posts: 176
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Feb 2007
Posts: 176
Petey,

I'm getting real pissed off at this and I don't even know you. What the "F" are they doing down in FL. It's time to start screaming for your life. If I was down there I'd go and do it with you. Can anyone down there help this guy? We can't afford to loose one of us because of an incompetent healthcare system. I know you wouldn't be treated like that up here at Beth Israel. I'm rooting for you. Don't let them let you down. Let us know how we can help.

Good luck,
Rob J.


6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
#28711 03-29-2007 05:19 PM
Joined: Jan 2007
Posts: 735
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jan 2007
Posts: 735
Petey,

I dont even know what to say ...I agree with Rob, it is very frustrating and annoying !! I am more then willing to call and do whatever I can ..I understand how to get around some red tape havin worked in a medical office ..however with the HPPA laws it is tough. As far as emergencey MA usually in NY it goes through within a week or so however they can give u a temporary card ! Otherwise MA has 45 to approve the case ( I used to sign people up for Ins in the Medical office ) I am more then willing to calm palm beach and see what there story is ..BUT Rob is right MAYBE it is time to get NASTY ...I dont mean Cussin at them ..I mean straight up tell them..This is MY life we are talking about ...YOU are providing a service to ME so This is what I need ...I just looked it up and Palm beach is part of Dana Farber ( I went to Boston ) and They ( DF) does test the slides themselves ..I know I went to them and have the Path report in hand. So tell thim ..IF the FL center cant do it ..then THEY need to send it to one of their centers that has a path lab ....tell them you know that BOSTON does ....
and that Dana Farber DOES !!!! SO I would address that with them !!!

Sharlee


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#28712 03-29-2007 05:24 PM
Joined: Jan 2007
Posts: 735
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jan 2007
Posts: 735
Petey

I may have been wrong .I did find a site for a palm beach afterwards ..however if you get nowhere check out the one affliated with dana farber


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#28713 04-03-2007 09:36 AM
Joined: Jan 2004
Posts: 1,116
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2004
Posts: 1,116
Petey, are you anywhere near Palms of Pasadena Hospital, they were wonderful there, treated my brother in 99 for testicular cancer, he had other issues too and was in the hospital for a long, long time....anyway, the point was that he did not have insurance of any type and they took him. Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---

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