#28435 12-22-2006 09:16 AM | Joined: Apr 2005 Posts: 25 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Apr 2005 Posts: 25 | Have not written to the board in some time. Dx T2N2M0 in jan 05, surg,chemo,rads, the whole shot. Started eating again after 8-10 weeks, resumed activity with partial paralyzed left shoulder. Enjoying retirement at age 63.
Now, after 16 blissfull months, I hear my PET scan is pos, L tonsil. To be scoped/biop the first week in Jan.
Wonder about surgical risk after max rads to the area? Can tolarate more chemo but sure don't look forward to any of this.
This disease is a bummer and old age is not for sissies. Damn. EDD | | |
#28436 12-22-2006 09:33 AM | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2006 Posts: 46 | Hi EDD,
Sorry to hear of your PET diagnosis but will still hold hope that the biopsy shows no cancer. Was your orginal site the right tonsil or someplace else?
After almost five years in remission, my husband was diagnosed with recurrent tonsil cancer in September. He has the neck dissection in October and has just finished 5 weeks of reirradiation and 2 cycles of Cisplatin. The treatment for the recurrence was not as tough as the original treatment in 2002. It was a different kind of radiation and targeted to a smaller area of his neck. So, even if you have to be retreated it may not be as difficult as the initial time.
Wishing you the best.
Loretta
C/G to husband SCC of right tonsil, Dx 5/02. Tx concurrent rad with Taxol and Cisplatin. Consolidation therapy Cisplatin and 5-FU. Recurrence 9/06, neck dissection 10/06. Tx with twice daily radiation; two in-patient infusions of Cisplatin.
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#28437 12-22-2006 11:00 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Surgery may not be an option. I had a head and neck cancer surgeon tell me that operating on radiated tissue was like cutting into a cooked beef roast.
I wasn't given a surgical option, only chemotherapy.
Yours may be different, every case is, but prepare your self, it isn't going to be pleasant. I am currently in my second recurrence of metatastic disease. Chemotherapy may be your only resolve.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#28438 12-22-2006 11:10 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi,
I had a total laryngetcomy and left neck diesscetion after having had XRT radition 4 years previous. It was my only option. Chemo doesn't cure it and couldn't have any more radiation. Surgeon did not mention concerns about the fact I had had radiation. I would make certain that whever is doing this is used to operating on irradiated skin.
Here's hoping the biospy comes back negative. Try to concnetrate on enjoying the holiday. Worrying won't change the results.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#28439 12-22-2006 01:01 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | edd,
Read Len's post Pet/CT 3 years out. Not all that shows up on the Pet or CT is cancer. Wait until the results are in before you assume anything.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#28440 12-22-2006 03:53 PM | Joined: Apr 2005 Posts: 25 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2005 Posts: 25 | Thanks all. Original site was base of tongue. Rads was imrtx35.
Yes, I hope PET was wrong or maybe over read. But then one wonders if feeling good about a neg report might also be premature. EDD | | |
#28441 12-23-2006 04:24 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Good luck, Edd, fingers crossed for you that it isn't a recurrence.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#28442 02-25-2007 01:49 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Edd,
I was just wondering if you had any further tests or news to share
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#28443 02-26-2007 10:05 AM | Joined: Nov 2006 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2006 Posts: 93 | Hoping the biopsy comes back clear.
My husband did his radiation first on a tonsil cancer.
Surgeon was the one who said do the rad first. He is totally comfortable working on radiated skin if the need arises.
Marg
caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
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#28444 02-26-2007 05:57 PM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2007 Posts: 168 | You are in my prayers Edd. Lee
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
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