#28425 12-06-2006 11:55 AM | Joined: Oct 2006 Posts: 5 Member | OP  Member
Joined: Oct 2006 Posts: 5 | Hi all, I'm almost 3 years out from tx, Im going to be on a feeding tube for life and I can't open my mouth very far at all. My concern is I just found a white spot, about the size of a dime, on the side of my tounge. anyone have any ideas what this might be?
thanks for your time.
Chip
scc tounge base two positive nodes right neck. T1N2b right neck dissection, and radiation. | | |
#28426 12-06-2006 12:53 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Hi Chip,
It sounds like something you should have your doc check out. But don't assume the worst. I jiust went in for an unscheduled visit to my doc last week because I had a white spot that the nurse at my MO's office said didn't appear to be thrush. My ENT reassured me that it's some sort of scar tissue that my tongue is "shedding" (whatever that means). Even though I am over a year out from treatment, there are apparently new spots like this that can form afterwards.
Phew. That was a big relief since I was really scared it was a recurrence.
So get it checked. But don't panic yet (I also am still on a tube, though hoping it may not be for life and I have trismus as well)
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#28427 12-14-2006 02:15 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hi Chip,
I just saw your post and was wondering how you made out with the white spot? Jack had 2 areas that sounded similar over the summer and on biopsy they turned out to be benign papillomas. Our ENT told us we won't be able to tell the difference between benign and malignant areas ourselves and that we should come in and have everything checked out. I figure that's why we have him.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#28428 12-26-2006 03:55 PM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 218 | Hi Chip,
Last month, during a dentist appointment, my dentist noticed a small white spot on my tongue. It was very upsetting to hear since I hadn't noticed it at all. I immediately called my ENT surgeon and arranged for an appointment two days later.
He looked at it, said it didn't appear to be anything dangerous but he wasn't going to leave it my mouth. Two reasons, he said - one is so that it wouldn't turn into anything serious and two, he didn't want me looking at it every day and wondering if it was getting bigger. Biopsy confirmed that it was not malignant.
I'd suggest that you go see your surgeon as soon as possible and have a professional assessment (and biopsy if warranted). Good luck with this, Sheldon
Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
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