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Joined: Sep 2006
Posts: 23
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Joined: Sep 2006
Posts: 23
His mom says I'm already on the HIPPA list he signed during his first set of consults. Sounds like that that will give me what I need. I need to call the business office & check. I know he's given them authorization to talk to me.

BTW. . . we went to the plastics consult yesterday. I've been surfing constantly since he was first diagnosed but he hasn't done any research. Plastics consult was the first time he's been given an idea of the actual proceedure/ inscisions/ etc. . . Also, because he's lost so much weight, they told told him they want to insert the PEG THIS WEEK, rather than waiting till the surgery. The proceedure is scheduled. Man. . .what a surprise.

Will be posting more (questions basically) about PEG on "Medications, Treatment, Procedures" board.

Thanks all,
Rebecca


CG 2 fianc
Joined: Sep 2004
Posts: 153
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Joined: Sep 2004
Posts: 153
I'm sorry you're experiencing a communicatin problem. We had that at the first hospital my brother went to, but once we got to MD Anderson, it was much better. Have you learned to use their message board where you can see his list of appointments and everything? That helps alot. As for what is going on, call, call, call. If you have to, go to the offices, let the receptionist know what you need and sit there until they send someone out to talk to you. They are SO busy there. I've never seen SO many patients before, but they will get to you. Unfortanetly is usually means a long wait. I didn't mind waiting, but I hated it when my brother was there with me and he had to wait, feeling a bad as he did. As David's sister I had no trouble getting his info. Maybe he had me on his list, but everyone was very helpful. As for the peg. It is important he get it now, then he will be ready when time comes. He doesn't have to use it now, I'm sure, but as his tougue and mouth become sorer, he may choose to take liquid supplements through the peg or even just as additional calories. He needs to stock pile the calories now, as he will have to rely on the peg, at least initially, and perhaps for quite a while, after the surgery.
BEST OF LUCK!!!
Tonya


Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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