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#28217 09-17-2006 03:59 PM
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Amanda,

I agree with Brian, I am not sure that anyone can feel something 2mm-did he say 2cm possiblly? Scans do not detect anything smaller than 6mm I believe, so I would be surprised if that is something that could be felt through touch.

Don't be embarassed if it is nothing. Anything that doesn't go away in a reasonable time frame should be checked out! That being said, if it doesn't go away after this, please follow-up and be persistant! Doctors often want to dismiss young people and oral cancer because it is rare-but it does happen!

Sarah


DX on 05/01/06 with SCC of right tongue. 05/11/06 surgery-tumor 1.2cm & 4 cm clear margins & parital glos. & neck dissection with removal of 34 nodes/1 positive at 4mm)T1N1MO
35 IGRT & 3 cycles of chemo (1 cisplatin & 2 carbo-complete on 8/9/06.
#28218 09-21-2006 04:42 AM
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Thank you for your advice, everyone. But it looks like at this point that if I do have cancer, it won't be oral cancer. The oncologist said he was pretty positive they were cysts or some other benign growth, but he's doing the CT scans just to be sure. But he said he was quite certain that my lumps are NOT lymph nodes because apparently there are no lymph nodes in the little areas that I do have lumps.


~ Amanda
#28219 09-22-2006 05:49 AM
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I am so sorry to continually nag this forum, especially considering that I haven't been diagnosed with anything bad yet (and I'm hoping I won't be), but I tend to be perfectly fine and happy after every doctor appointment because they say what I have isn't cancer, and then after a few days I fall back into depression. This is no way to live at any age, particularly 19, and I don't know how much more of it I can take (September 16 was my three-month mark from first finding a lump). I go for my CT scan this afternoon and then meet with the oncologist again on Monday, so hopefully I'll know what it is then, although a part of me doesn't really want to know what it is if it is cancer. I probably shouldn't have gone online and researched things in the first place, because then I find out that oral cancer is typically very aggressive in younger people (although I've been assured many times it isn't that, it's not like they've actually done any tests or biopsies yet). And I'm still afraid that the doctors aren't really taking me seriously because apparently cancer in the 15-19 year old age group is quite rare (I actually would have developed the first lump when I was 18, because I found it less than a month after my birthday) and is often lymphoma if it is. If an oncologist, who sees these things everyday, even in my age group, thinks it is nothing to be concerned about, should I still worry so obsessively? He sounded very sure that the lumps in my neck are not lymph nodes, although he did call them "unusual". And I'm not so sure of the cyst story because the one lump flattens out on the end over my windpipe (unless cysts are supposed to do that). I'm just really in a bad place right now. My mom keeps telling me that I'm fine and my doctors apparently don't think that my lumps are cancer. But then I come on here and update on my good news and I get replies that I still need to be persistent and this still COULD be cancer. So I don't know what to think anymore. If this was cancer, and had worked its way from one side of my neck to the other, wouldn't I be feeling something painful by now? Wouldn't my blood tests show up something even remotely unusual? Oh, and this one last question is the one that I can't find anywhere and would really like answered. How does cancer grow? I figured that if what is on the right side of my neck is a lymph node that is swollen because of cancer, wouldn't it continually get bigger first without seeming to grow out from the main little bean-shaped ball that a lymph node is? And the lump on the left side of my neck literally popped up in less than a day and hasn't gotten remarkably bigger since then, so isn't that a good sign? I'm just so worried because I can't find anything else good this could be. My blood tests are now completely normal, so it's not an infection. The oncologist said they're not lymph nodes, either, so that really does rule out infection. I didn't think that cysts could grow the way whatever is in my neck is. I just don't know. Anyway, again, I am so sorry to continually do this but I don't know who else to tell my concerns now because my mom says I shouldn't worry or contemplate anything until a doctor has officially diagnosed whatever this is with 100% certainty. Can benign tumors grow weirdly like mine seem to have? Eck, I'm sorry, I'll stop wasting valuable time now.


~ Amanda
#28220 09-22-2006 02:30 PM
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Amanda, here is a hugh hug from me [age 65] to you and some grandmotherly advice- trust what the Docs are telling you-if you have confidence in them- and start thinking about going to Medical School. With your inquisitive mind, you would be a good doctor smile Go get your hair and nails done and buy a fun outfit and get back to being 19 yrs. old! We'll be here if you need us. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
#28221 09-23-2006 03:45 AM
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Thank you so much. I think I needed that. And I had my CT Scan yesterday and I know that the radiologist saw them and she was all chipper and said, "We'll have these to your doctor in 3 or 4 business days." So hopefully everything is fine. Thanks again. smile


~ Amanda
#28222 09-29-2006 02:49 AM
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Well, I go back to the oncologist on Monday. He's had my CT Scans for a few days now and hasn't made a call to rush me in, so I'm hoping that's good news. My dad actually had a biopsy done on a polyp in his sinuses a few weeks ago, and when he had his CT Scan prior to this, his GP had him into the surgeon the day she got them. Of course, he's a smoker/drinker and almost 50, so naturally they would think it might be something serious. I'm still frustrated that all of the doctors I've seen seem to downplay my lumps because I'm only 19. And I would feel more confident in them (I have seen a grand total of 5 now) because I would assume that typically a group of doctors (including 3 specialists) would be doing an FNA if they honestly thought something was wrong, but I really don't want to have a situation where they could have done something a few months ago but now it's too late because they decided to take the watch and see approach. I'm feeling very bitter right now.


~ Amanda
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