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#28138 07-07-2006 12:15 AM
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RobbieC Offline OP
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WOuld you suggest that I go to a ENT instead?.. Or a Oconologist(sp?) Or should I just tell the oral surgeon to do a biopsy instead of removal? It seems to me that if the whole thing can be removed that would be good. I dont understand why its better to leave some. ANyway WHo should I go to in order to take the right course of action here?

If it does turn into something what disciplines do I need on my "team" and am I responsible for assembling this team? If not then who?
I certainly named this thread correctly

#28139 07-07-2006 02:57 PM
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YOU NEED TO GO TO AN ENT AND HAVE A BIOPSY DONE. IT SOUNDS TO ME LIKE THIS GUY IS GOING TO REMOVE WHAT HE THIMKS IS A BENIGN TUMOR TO PLACATE YOU. NOT A GOOD REASON TO GO UNDER THE KNIFE. THEN YOU CAN MOVE ON WITH YOUR LIFE. THIS COULD ALL BE PRECIOUS TIME WASTED ON SOMETHING THATS NOT THERE. TRUST US ALL HERE, DONT WASTE IT.


Kerry/wife of stephenm
StageIV - Base of Tongue T4N0M0
XRT x42 / Taxol and Carboplatin x4
Tx. Finished 5/08/06
#28140 07-08-2006 08:50 AM
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Please have them only do a biopsy for the reasons I indicated above. I know that it may seem like more work, but if it is cancerous, they will send you to an ENT anyway for further treatment. You can have the oral surgeon do the biopsy, but just tell him you only want the biopsy, not everything extracted. If you don't feel that he is willing to do that, go somewhere else to have it done.

More likely than not, it is benign, but I am also 32, a nonsmoker/nondrinker and I had it for several months before they did a biopsy on me.


DX on 05/01/06 with SCC of right tongue. 05/11/06 surgery-tumor 1.2cm & 4 cm clear margins & parital glos. & neck dissection with removal of 34 nodes/1 positive at 4mm)T1N1MO
35 IGRT & 3 cycles of chemo (1 cisplatin & 2 carbo-complete on 8/9/06.
#28141 07-08-2006 01:55 PM
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I know that my mom had pre-cancerous ulcers in her mouth for 10 years before she was diagnosed with scc she would often tell me that they bothered her more during certain times of the month it seemed strange but thats what she would tell me. The best thing for you to do is definately see an ENT and have a biopsy done for peace of mind.

Take
Care,
Dani


Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
#28142 07-09-2006 07:09 PM
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RobbieC Offline OP
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Ok so I am going to the doctor in about 12 hours and I am going to ask him to refer me to an ENT.... I am a walking bag of nerves at this point. I cant eat and I only sleep with the help of medication. My dad thinks its nothing to worry about and people tell me to relax until I know something for sure. I WISH I COULD

#28143 07-10-2006 09:03 AM
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UPDATE.... I went to the doctor today. He said that it didn't look bad nor did it look like a typical cancer. He said if it is then not many people present this early in the game to aggresively manage it. He's going to send me to an ENT in 2 days and we'll go from there. But he said theres a 99.9% chance its nothing and if it is something its extremely early stage so I feel ALOT better. ANy advice for my ENT visit?

#28144 07-10-2006 09:06 AM
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My advice is just to relax and get your mind off of it. You may be putting yourself under a lot of undue stress for nothing.


SCC Right Lateral Tongue T2N0M0 Dx 01/12/06, Surgery 01/25/06. Partial Glossectomy, Bilateral Neck Dissection - 22 lymph nodes - all clear. No radiation.
#28145 07-10-2006 11:20 AM
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I agree with Amy. Remember, it's not cancer until they say it is.


DX on 05/01/06 with SCC of right tongue. 05/11/06 surgery-tumor 1.2cm & 4 cm clear margins & parital glos. & neck dissection with removal of 34 nodes/1 positive at 4mm)T1N1MO
35 IGRT & 3 cycles of chemo (1 cisplatin & 2 carbo-complete on 8/9/06.
#28146 07-13-2006 11:58 AM
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I went to the ENT and he looked around but said he didnt see anything to biopsy. He told me to just keep getting my 6 month check up at the dentist and I would be fine. The problem is Im still not sure what makes my tongue bother me so much on that side. But I feel a WHOLE LOT better.

#28147 07-18-2006 09:50 PM
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RobbieC Offline OP
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Returned to the oral surgeon today. He said that the ulcer was completely gone. He said he wouldve biopsied it but there wasnt anything there adn everything looked good. He said hes 99% sure its trauma related. But it still bothers me. but if theres nothing to biopsy then I guess that is that. ANy comments?

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