#26895 11-03-2004 05:05 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | delaneli
Member
Member # 1630
posted November 01, 2004 12:08 PM
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Hi Chris,
I wanted to say hello to a fellow newbie. I was diagnosed with SCC just over a month ago and am trying to make heads and tails of all this. I have an 18 month old so I think I can imagine some of the things you are feeling. I try and live in the moment. It's hard sometimes, but it helps when I am overwhelmed with it all. As the others have said, become informed and go for a second opinion. We'll get through this!!
Lisa
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Posts: 3 | From: Ontario | Registered: Oct 2004 | IP: Logged
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26896 11-03-2004 05:06 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Lisa,
I thought it would be nice to give you a formal introduction to the 'hood. Welcome and sorry you had to find us. Ask and it shall be answered.
And to top it off, I probably should have put you under "Introduce Yourself". Sorry.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26897 11-04-2004 05:20 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Lisa!
Welcome to the group! You will find that you are now added to many prayer lists around the world, too. It must have been very hard to endure your treatments and still have energy to keep up with an 18 month baby! But they do give you a reason to keep up the fight, don't they?! My youngest was 7 when I was diagnosed. The energy does return though, played tennis with her this summer!! Your life will get easier too! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#26898 11-04-2004 06:14 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Chris,
Sorry you had to find us but glad for you that you did. You won't find a better source of information on Oral Cancer then on this website.
Ask any question you want and someone will reply.
What type of treatment are you going to receive.
What was the stage of your cancer? Knowing more about what you have will allow us to offer suggestions and offer questions you will want to ask your doctors.
Please keep us posted and I'll be praying for a good outcome for you and your family.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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