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Joined: Sep 2007
Posts: 24
nycgrl Offline OP
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Joined: Sep 2007
Posts: 24
hello all,
i've been lurking for a couple of months and i must say I am moved by everyone's experiences and courage dealing with all you have to. my hubby del has base of tongue t3n3m0. and has completed treatment. but as you all know, there are still many issues afterward. so i am entering the group forum for your advice and friendship, as i am the primary caregiver,(family is small, and dysfunctional)and this will be a long road. i will be posting to issues after treatment. thank you and blessings to all.


wife to Del,dx.4/07 BOT SCC t3n3m0 3rounds chemo (5fu,cisplat,taxotere,erbitux)35 IMRT tx.with weekly erbitux.finished 9/07. 12/07 biopsies +,surgery not an option.returned to palliative chemo 2/08. 6 tx.of cisplatin/taxotere,methotrexate 8 tx. He died Aug 20,2008, but lives always in my heart.
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Welcome to the site! It's the best place to be for the latest information, research and support and compassion from people who've "been there". Tell us more about our hubby and are you both are doing. I found OCF a couple of weeks into my son's radiation Tx and don't know what we would have done without the great people here! So stay close, keep posting. There is always someone here ready to listen and care and offer helpful suggestions.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Aug 2007
Posts: 580
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Aug 2007
Posts: 580
Nycgrl,
Welcome!! Sorry to have to welcome you this way. My thoughts and prayers will include you and del.
Dysfunctional family...welcome to the club! You'll fit in here just fine in that case. The people here are wonderful, informative, caring and occasionally some dysfunction pops up. Fire away with your experiences and questions. You'll get plenty of advice and first hand experience on almost anything.
As the primary caregiver you will also have your own issues and we have plenty who can chime in and help you out. Your role is a tough one so my first advice is Take Care of You! Get your rest, eat right and look after yourself.
This wonderful family will be here to support you.

God bless you and your family.

Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
Joined: Apr 2005
Posts: 2,676
JAM Offline
Patient Advocate (old timer, 2000 posts)
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Joined: Apr 2005
Posts: 2,676
Dear Ncgrl, Hope we will be able to fill a need and give you support in your caregiving role. Please be more specific about your husband's tx and time frames so we are all on the same page. Amy in the Ozarks


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
Joined: Sep 2007
Posts: 24
nycgrl Offline OP
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Joined: Sep 2007
Posts: 24
well, how to begin?? Del was diagnosed in april, after about a month of not being able to swallow, and having a sore throat. he had lost 20 lbs. and still didnt want to see the doctor; but finally he did, and then we were locked into the rollercoaster that is cancer. he is t3n3mo. the tumor had traveled down to the epiglottis and included 1 vocal cord. so, he had 3 rounds of chemo- 5fu, cisplatin, and taxotere, and Erbitux. which reduced the tumor, 85%. we were thrilled!! then came 35 treatments of radiation, and that just knocked him almost out. that ended last week of sept. until then i had been so hopeful, but now its been 2 months, he cant swallow anything yet, and he's had terrible headachs that have required the patch and extra meds. he sleeps most of the day. fortunately he tolerates the tube feeds well via peg. but he's much sicker than i expected him to be after all this,.. and i'm scared he'll never be the same. last week he ad a pet/ct scan and today i think we'll hear the results,.. we're seeing a surgeon about another biopsy. the last visit they scoped him and found some "ulceration" that they want to check out. so, it's 345am my time, and here i sit unable to sleep.
thank you all for letting me get this out.
nycgrl


wife to Del,dx.4/07 BOT SCC t3n3m0 3rounds chemo (5fu,cisplat,taxotere,erbitux)35 IMRT tx.with weekly erbitux.finished 9/07. 12/07 biopsies +,surgery not an option.returned to palliative chemo 2/08. 6 tx.of cisplatin/taxotere,methotrexate 8 tx. He died Aug 20,2008, but lives always in my heart.

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