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#24637 11-27-2007 11:02 AM | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | OP  Senior Member (75+ posts)
Joined: Sep 2007 Posts: 98 | I went last Tuesday, Nov 20, for my first post Tx PET scan. I talked to the ENT on the phone today and he said I have an uptake in my tongue and neck. I think he said slight, but I can't remember. He said he might want to get me on the operating table to look around and take some biopsies. We are to talk about it some more at my next appointment on Dec 4.
I was really praying to get through this without any surgery. I am really bothered by this news.
Tom
Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
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#24638 11-27-2007 12:17 PM | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | How I feel for you - the disappointment and the uncertainty of the future, but Hang in there Tom. I am sure all of the things your doctor said are swirling around in your head but try not to get too far ahead. Personally I wouldn't understand what he means by "uptake".
Know that there are many of us here who have been through at least one surgery and can help you through that process if that is what needs to happen. Keep focused on your goal - Health - regardless of what it takes to get there.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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#24639 11-27-2007 02:10 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Tom: We're all in this together...one day at a time....
Let us know of your plans following your appt. next week.
You are in our prayers!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#24640 11-28-2007 03:15 AM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | I'll be thinking of you. Be sure and ask the ENT about false positives. You had a lot of radiation, and are not that far out from treatment. Have they correlated the hot spots with an anatomical feature via CT?
I will be having my next PET scan on Tuesday, so will keep you in my thoughts.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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#24641 12-05-2007 03:35 AM | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | | OP Senior Member (75+ posts)
Joined: Sep 2007 Posts: 98 | Well, I met with the ENT on Tuesday and discussed the two uptake spots found on the PET scan. They said the spot on my neck was to small to worry about now. The uptake on the side of my tongue felt a little hard, so he wanted to get me on the operating table and take a biopsy to clarify if it was scar or healing tissue, or residual cancer. I am scheduled to go on Dec 20th. He said there is a 50/50 chance it could be either way, and just wanted to make sure. He didn't seem overly worried that it was cancer, which I guess I could take as a good sign. He did do a really thourogh job of feeling around my neck and tongue. And so I wait again.
Thank you all for your support and please keep me in your prayers.
Tom
Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
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