Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#24606 10-22-2007 06:15 AM
Joined: Oct 2007
Posts: 8
lynn999 Offline OP
Member
OP Offline
Member

Joined: Oct 2007
Posts: 8
Hi I am Lynn and am a 48 year old Nurse from Coverntry in the UK.

I was diagnosed with Squamous Cell Carcinoma of the left tonsill in July this year.

Since them I have had a left toncillectomy and excision of palate, a left sided neck dissection, insertion of PEG tube, 35 doses of radiotherapy and 2 doses of Cisplatin poisoning. I finished treatment on 19th October and am now waiting to heal.


Age 49 SCC Lt tonsil/soft palate with tonsillectomy 18-7-2007, 7-8-2007 left sided neck dissection 3 nodes positive, 22-8-2007 PEG insertion. 35 doses radiotherapy and 2 doses of Cisplatin (3rd dose cancelled due to neutropaenia. Finished Tx 19th Oct 2007 lost 48lbs in weight.
#24607 10-22-2007 09:03 AM
Joined: May 2007
Posts: 632
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: May 2007
Posts: 632
Welcome Lynn--nice to have another Brit on here!
No doubt you will have been reading posts and seen that there are many more with same diagnosis to yours.

Everyone here is very helpful and I'm sure if you've questions, they will be more than happy to answer them!

Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#24608 10-22-2007 10:13 AM
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Hi Lynne and welcome from another Brit

There are a few of us about on this site!!!

Glad all is going ok keep us up to speed on your progress

liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#24609 10-22-2007 10:56 AM
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
Lynn
Hi we will soon be able to have a Brit only section.
Hope your road to recovery runs smoothly.
Sunshine.. love and hugs
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
#24610 10-22-2007 11:46 AM
Joined: Jan 2007
Posts: 735
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2007
Posts: 735
Hello Lynn

from Across the Pond as they say !!! I know that you will be able to find much information and support on here to help you on your road to recovery !! HUGSSSS across the way 11


Shar


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#24611 10-22-2007 12:55 PM
Joined: Jun 2007
Posts: 510
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Jun 2007
Posts: 510
Howdy from the Southeastern coast of the US! Welcome to OCF! We're glad to have you, and look forward to getting to know you better.


Lois & Buzz in NC


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#24612 10-22-2007 02:18 PM
Joined: Nov 2006
Posts: 166
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Nov 2006
Posts: 166
Hi Lynn, welcome to the site from a "yank". If you are half the fun as these other Brits get ready for some good laughs. This is a great place for answers to any of your questions and to have some fun. May you heal quickly. smile


Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 smile
#24613 10-22-2007 05:30 PM
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Awww Bill who knows one day all us brits might just jump in a "chara" and take a road trip round the US to meet all you amazing lovely people.I'll drive all you old crocks Bren wink

love Liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#24614 10-22-2007 08:23 PM
Joined: Dec 2003
Posts: 528
"OCF Down Under"
"Above & Beyond" Member (500+ posts)
Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Joined: Dec 2003
Posts: 528
Welcome from down under, Lynn. Sorry you have had to go through all the treatment. In my case I had surgery and radiation, no chemo. Nearly 5 years and I'm doing fine.

Love from Helen


RHTonsil SCC Stage IV tx completed May 03
#24615 10-23-2007 01:49 AM
Joined: Apr 2007
Posts: 64
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Apr 2007
Posts: 64
Welcome Lynn,
You have come to the right place! Now let the healing begin!
Born in London moved to Canada in 1970.
Best Regards,
Adele


Adele,
mucoepidermoid carcinoma of the submandibular gland, 05/06, left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo,
11/07 surgical biopsy of lymph node left neck, no cancer!
#24616 10-23-2007 02:59 AM
Joined: Aug 2006
Posts: 199
Me2 Offline
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Aug 2006
Posts: 199
Hi Lynn - glad you are done with the treatments! I have to chime in here as I am a "closet" Brit - born in Luton, my family came over to the U.S. when I was a small child but all my other relatives are still there!


Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
#24617 10-23-2007 04:36 AM
Joined: Sep 2007
Posts: 13
Member
Offline
Member

Joined: Sep 2007
Posts: 13
Welcome Lynn!

I hope you find this website as helpful as it has been to me. I have learned so much and the people are so supportive.

I am a 56 year old Nurse, and I had my right upper jaw and partial palate removed 26 months ago, with a 30 day course of radiation. I just received the results of
my PET scan last Sat., and I am cancer-free. I am so relieved!

How are you feeling? I know that you just finished treatment, and it takes time to heal.
Please keep us posted on how you are doing.

Carol

#24618 10-23-2007 08:35 AM
Joined: Oct 2007
Posts: 8
lynn999 Offline OP
Member
OP Offline
Member

Joined: Oct 2007
Posts: 8
Thanks to all you fellow Brits and others for your welcome.
I have been to the USA a few times but only to New York (once), Las Vegas (once) and Florida (11 times my favorite place)

I am struggling at the moment with the dreaded 'thick' secretions which alternatively choke me and make me sick, its probably the worst thing about this. GRrrrrrr.

Love
Lynn


Age 49 SCC Lt tonsil/soft palate with tonsillectomy 18-7-2007, 7-8-2007 left sided neck dissection 3 nodes positive, 22-8-2007 PEG insertion. 35 doses radiotherapy and 2 doses of Cisplatin (3rd dose cancelled due to neutropaenia. Finished Tx 19th Oct 2007 lost 48lbs in weight.
#24619 10-23-2007 03:13 PM
Joined: Apr 2005
Posts: 2,676
JAM Offline
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
Hi, Lynn, I can't tell from your signature exactly when[if] your radiation has ended, but the secretions are a struggle for lots of people. What are you getting to help deal with them? Can you get a portable suction machine? It helped my husband alot. Hope the peg is helping you maintain your ideal weight. Please let us know any other issues you want to have addressed as there is lots of experience here. Amy in the Ozarks


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
Page 1 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5