| |
#24568 10-24-2007 03:57 AM | Joined: Oct 2007 Posts: 83 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 | Cat,
I did the PEG two weeks ago today and although its a pain sometimes, I can get nutrition into the body. I'm a big guy 325# 6'4" and they have really picked on me about NOT dropping any weight while in this fight. I've done 3 rounds of Chemo and am on my 22nd radiaton ride with a weekly dose of Erbetux and my poor mouth is just cooked. My fillings and gold crowns are a source of pain for me too... I've tried to be creative, using two of those little cotton rolls the dentists use and a little tape and gause to make myself a pair of inserts that I put in just before my radiation trip. Seems to be helping some, even tho today my tongue is beet red and tender. Hope all goes well for y'all.
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
| | |
#24569 10-24-2007 05:03 AM | Joined: Oct 2007 Posts: 14 Member | | OP Member
Joined: Oct 2007 Posts: 14 | Gary,
Keith weights 183 and is 6'3". Can't afford much weight loss there. The rad machine has been down for repairs 2 days now. A bit of a break. He also has CT guided IMRT 35x. Is there anything that will protect the teeth during rad tx? I'll pass on the cotton roll tip.
Thanks,
Cat
CG of BT SCC Stage IV age 55 8/30/07 lymph gland removal and Base of Tongue biopsy. Radiation started 10/10/07 x 35 IMRT.
| | |
#24570 10-24-2007 03:13 PM | Joined: Oct 2007 Posts: 83 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 | Cat,
The cotton rolls are not perfect...but trust me they seem to help.
Tell Keith that doing a PEG isn't that bad....plus if the Dr. prescribes it the insurance co. may pick it all up. I'm feeding 3 times a day, 1 560 cal. for lunch ( at work with a syringe) 2 450 cal. at 7p.m., then I set up my pump with 3 450 cal cans to run while I sleep. which gets me over 2500 Cal a day....I hate it, I'm a real deal foodie, but it keeps me healthy and helps my body fight the good fight.
Best wishes,
Gary
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
| | |
#24571 10-24-2007 03:18 PM | Joined: Oct 2007 Posts: 83 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 | ps.
I use two of the cotton rolls, with a wrap of gauze to hold them together. Then wrap a strip of tape around them and make a little flap on the side about 1/2" or so that I can bite on. Then slip one set inside between my tongue and teeth.
If you've ever had a tooth xray..thing bite wing.
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
| | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
| |
