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#24526 10-19-2007 09:59 AM
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As long as you are providing explanations, what is Cochon de Lait?

All this BBQ talk is making my mouth water. Amy, I'd love to get your BBQ sauce recipes. Every day is an adventure in figuring out what Dan can or can't eat. We haven't tried ribs yet.


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
#24527 10-19-2007 10:44 AM
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Margaret
Cochon is Pig in french.
i.e. a young (suckling) pig, hence the milk reference. See Kevins answer from Oct 18th.

Bon App


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
#24528 10-19-2007 04:55 PM
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Amy,
Funny you mention that about John and the ribs. You and I talked about BBQ in the past (remember the new smoker the kids got me last year, well I fianlly got it together this spring and got to enjoy it!!). I was really worried about ribs, because most meats are still a challenge, but the ribs, if done correctly have enough fat in them to make them "smooth & easy" going down. I'm able to handle some spice at this point as well so while the taste is still limited it's a high light!! It's great to have some experts aboard, maybe we will learn some tips and tricks.
So I agree, enjoy that Piggy!! Pork fat rules for sure!!!
Steve


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

#24529 10-20-2007 03:21 AM
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Steve,
Get that smoker at around 225* and take a nice pork butt at room temp....give it a little rub with some yellow mustard and then a nice sprinkle of salt, garlic powder, and black pepper. Put it on the smoker with a fist sized piece of wet apple wood and let it work for about 12 hours or so (keep it moist with some apple juice and water). THEN...lay it on some heavy foil...give it a nice squirt of parkay, then wrap it up...and then wrap it again. Now put it in an empty cooler and put a blanket on it and close the lid.
Go fix everything else you want for the meal..in two hours take the Butt out and either slice it or take two forks and shred it...serve with some sauce on the side. Garunteed to make you jump up and down smile


Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
#24530 10-20-2007 05:53 AM
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This thread about the BBQ works almost as good as my saligen smile


18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
#24531 10-20-2007 11:40 AM
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You people are cracking me up!
I thought the best ribs were from the Longhorn Steakhouse!


CG to friend Mary. SCC Stage IV-A of rt. tonsil, mets. to lymph node on rt. DX 06/07,tonsillectomy 08/07, Chemo Cisplatin, Taxotere and 5FU X3 cycles; RAD completed 1/20/08 RND scheduled for 3/08. 54yr.old, NS, social drinker.
#24532 10-20-2007 01:24 PM
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OK, this is weird:

Yesterday afternoon, FEDEX rings my door and places a rather large box on the porch. I open it to find manna from heaven: North Carolina pork BBQ, collard greens, black eyed peas, hushpuppies, and squash from the OINK EXPRESS! Seem that Bill's brother, upon hearing that Bill is trying to eat by mouth now, decided to tempt him with food that he dearly loves. OINK EXPRESS is a mail order system with King's Barbeque...an institution in Kinston, NC for 60 years, very near the NC coast where Bill grew up.

It worked...Bill was able to eat some of his beloved food tonight..only three weeks from his last treatment.

So, everyone keep talking BBQ...you may have a ring at your door!

Deb

P.S. If you are interested, 1-800-332-OINK or kingsbbq.com


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
#24533 10-20-2007 02:02 PM
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oh, Deb! All this talk of good 'ole NC BBQ (and other 'posers', lol..and poor Buzz can't eat a thing (and I REFUSE to eat ANYTHING in his presence)! It's all I've thought about for TWO days, and NOW, you get a special delivery from KING'S!
...SO glad that at least the two of you are in 'HOG HEAVEN'!

Lois & Buzz in NC


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#24534 10-21-2007 03:53 AM
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Yep, can you believe it Lois...what a treat!

As far as you eating in front of Buzz...let me give you my thoughts. You have a job - caregiver - and that requires keeping your health optimal. If you need to eat...eat. Buzz will understand and if like Bill, really didn't desire or crave much food at this point in his treatment. Caregivers have a lot of stress without having to tiptoe around to have a meal and truth be known, Buzz is probably feeling guilty enough without adding this to it so...EAT young lady and look toward Thanksgiving and a more normal Buzz.

Oh, and last night was a pork celebration - football, beer, and BBQ! Less the beer for Bill.

Oinkingly yours, Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
#24535 10-21-2007 03:06 PM
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Lois,
I agree with Deb.... eat!
At least as far as I was concerned this was never an issue for me. Should you go out, there are always soups, mashed potatoes, meatloaf and dessert.... tiramisu, creme brule (sorry no accents) or custard.

M


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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