[quote]kimberlyryan28
Member
Member # 4861

posted October 10, 2007 09:07 PM
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I'm trying to find anyone who has been diagnosed with adenoid cystic cancer. This is a cancer that is found in the mouth. Mine was found in the lateral nasal wall and skull base.

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ACC stage 2 in lateral nasal wall, Craniotomy and Rhinotomy 5/15/07. IMRT started 8/30/07. kimberly mitcham

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Posts: 5 | From: Georgia | Registered: Oct 2007 | IP: Logged
[/quote]Kimberly --

Do a search of the message boards with adenoid cystic as your search term. (The link is at the top of each page.) You'll find several people who have been affected by ACC, either as a patient or as a family member/friend. You can then click on the e-mail link above each post to send a message to that person.

All the best,
Leslie


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.