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#24384 09-25-2007 02:36 PM
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I'm Tom Alexander, 52 y.o. male, recently diagnosed with squamous cell carcinoma. This started as sore throat and lump on the side of my neck and now I have had my "prep" surgery, installation of a tube into my stomach for liquid nutrition and a port to accept chemo drugs. I really don't know anything about what stage I'm at or any more details, but the dr says I'm to start both radiation and chemo shortly. So I just wanted to introduce myself. Fortunately I am surrounded by family and friends who are all being just as supportive as possible, so it's not like I have to face this all alone.


Tom Alexander
SCC Stage IV BOT, completed 35 Tx TOMO & 7 Tx chemo Taxol + Carboplatin 12/04/07. No surgery.
#24385 09-25-2007 03:11 PM
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Hi Tom,

Sorry you have to check in here on the one hand but good to see you here otherwise. You will find this forum to be quite valuable to you as you begin your journey. It is so helpful in many ways and never feel strange in asking any question on your mind. I didn't find the site until I was about a month out of treatment last year. You will find many folks quick and eager to respond to any thoughts, concerns or questions you may have.

Exactly where is the cancer situated in your case? Base of tongue, lateral tongue, tonsils, etc.?


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
#24386 09-25-2007 04:24 PM
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Hi Tom

Welcome to this site. You and your family and friends will find alot of information on here to help with all that you may come up against in your fight. It seems like when you first find out that things run 24/7 and you dont have time to really take in all that is happening. But once you get your plan of action down and started you feel much better.


Barb
CG for Marvin.
#24387 09-25-2007 06:57 PM
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Welcome, Tom...Sorry you have to be here, but you are at the right place. Thank goodness you have family and friends around you. Share with them at every stage. Don't decide that you have "burdened them enough." That's when you begin to hide from them and try to carry too much by yourself and rob from them the privilege of giving of themselves to you. AND don't stop coming here. Nobody really understands your situation as well as someone who has gone through it. Welcome. I hope you find answers and comfort here.


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
#24388 09-26-2007 12:23 AM
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Hi Tom and welcome to OCF.Hope all goes well and you dont need us too much

liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#24389 09-26-2007 10:20 AM
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Tom,

You have found the right place to hang out and have almost any question or concern answered. All of the people here are wonderful, caring and full of information. You just have to ask.
My thoughts and prayers are with you and your family.

E-mail or PM me anytime if you feel the need.

Cheers,

Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
#24390 09-26-2007 02:19 PM
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THANKS EVERYONE FOR THE WARM WELCOME. I learned today that I'll (we'll, because my wife will join me of course) go in for first oncologist exam/evaluation on Monday and will hopefully lay out out a plan of action. Will keep everyone posted here. THANK YOU ALL AGAIN!!


Tom Alexander
SCC Stage IV BOT, completed 35 Tx TOMO & 7 Tx chemo Taxol + Carboplatin 12/04/07. No surgery.
#24391 09-26-2007 03:06 PM
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Hey Tom and Wife! Be sure you take along a notebook on Monday and someone needs to write down everything you hear. From this point forward, you will need to have a good handle on all the "lingo" [ie-foreign language being spoken to you unless you are in the medical field] At 1st, you may not understand 1 in 3 terms, but you can always ask here and soon, you will become fairly conversant- at which point you will have alot more questions eek Those of us[patients and caregivers] who have been through or are going through this can give you lots of help and info along the way. You will find this to be a very supportive family along with your own. Amy in the Ozarks


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
#24392 09-26-2007 03:24 PM
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Tom,

What she said!!
I agree 100% with Amy.
My sense of humor basically states it this way; Ask your wife, she's probably more than willing too so, make is not a good term, your official scribe.
Before appointment: write down any concerns and/or questions you have about anything even the hospital menu.
During appointment: take short notes of all points the Dr. makes. Don't be afraid to ask him/her to slow down, back up or clarify anything you are not certain of. Your lovely scri...I mean wife can record it. She too can ask any questions she wants.
After: Go for a nice long walk together, hold hands and laugh (leave your notes at home).
Then go over all that you have written and discuss the situation. Then write down any new questions that come to mind.
My advice from my personal experience with my treatment is, never be alone when the doctors visit you...and have someone taking notes.

My experience as a cancer patient was that I had 1000 questions to ask but, once the Dr. came in the room it was like a fishbowl was put over my head. I didn't remember, hear or comprhend anything let alone understand.

Your doctors are used to this and should welcome your efforts.

My thoughts and prayers are with you and your family Tom.

Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
#24393 09-29-2007 01:00 PM
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Welcome to the forum Tom. We hope we can you get through this. Let us know your Dx as soon as you can.


Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee

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