#24141 08-26-2007 11:22 AM | Joined: Aug 2007 Posts: 83 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Aug 2007 Posts: 83 | I am a new member, just had biopsy on 8/24. At this point all I know is I have T2, I go in this week to find out the full results. I am looking to the forum to help me understand and learn from others.
Bill Van Horn-53 ex-smoker, social drinker, Biopsy 8/24, Diagnosed 8/30/07 BOT T2N2-B MX Stage IV. Started treatments 10/1/07. IMRT 35 x, Cisplatin - 3 cycles - completed treatment 11/16/07. CT Scans on 1/15/08 all clear Selective neck dissection 1/28/08. All nodes clear.
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#24142 08-26-2007 11:47 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Tell us more, Bill....like where your biopsy was taken, and what your symptoms are...and how you discovered your problem.
You will find someone here with exactly the same experience, and you will receive understanding from all of us.
XO--
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#24143 08-26-2007 12:46 PM | Joined: Aug 2007 Posts: 83 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2007 Posts: 83 | Thanks for your reply....Biopsy was taken at Baptist Hospital in Winston-Salem, NC. Started with a lump on my neck a couple of months ago....no discomfort. Went to see my family doctor, 8/20 had ultra sound, 8/23 CT Scan and 8/24 biopsy. Trying to get up to speed on oral cancer, this site, etc.
Bill Van Horn-53 ex-smoker, social drinker, Biopsy 8/24, Diagnosed 8/30/07 BOT T2N2-B MX Stage IV. Started treatments 10/1/07. IMRT 35 x, Cisplatin - 3 cycles - completed treatment 11/16/07. CT Scans on 1/15/08 all clear Selective neck dissection 1/28/08. All nodes clear.
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#24144 08-26-2007 01:27 PM | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Bill,
As August said, you can always find someone here who can relate to your current problems. Believe me, having just slugged through the diagnosis/second opinion/ENT/Medical Oncologist/Radiation Oncologist/dentist/surgeon, etc, I understand what you are going thru and how overwhelmed and in shock you are.
Just keep reading here as much as you can. You will alternately be informed and then shocked at all the "crap" this diagnosis brings but you will find comfort in numbers.... those of us who have walked or are walking thru this storm and can be of help.
Good luck to you from former North Carolina folk.
My Bill was born on the coast (Beaufort/Morehead City area) and graduated from NC State. Family farm is still there and we visit as often as possible..
Regards, Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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#24145 08-26-2007 02:52 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Bill: So glad you're here! As far as I can tell, you and I are the only ones here from NC - we are in Troy (Montgomery County), just down 220 from you! One of Buzz' daughters lived in K'ville until recently, and is now in High Point.
My husband, Buzz, recently spent a couple of weeks at Baptist..his doctor is Chris Sullivan, and we were SO pleased with his care.
Buzz is getting a PEG tube at Pinehurst tomorrow morning.
Feel free to e-mail us, or I'd be glad to give you a phone number if you prefer to talk instead of type. (my cell phone number is area code 336, so it wouldn't be long distance for you!
Looking forward to hearing more about your situation. OCF is a GREAT place to start!
Lois & Buzz
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#24146 08-26-2007 02:58 PM | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2006 Posts: 294 | Bill,
Was the lump you described on the side, right or left, somewhat below one ear or the other?
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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#24147 08-26-2007 02:58 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hi, Bill, start taking good notes at your next appointments and keep us updated on what is going on. You may find that you will get more info here than you are prepared for   !There is always someone wiling to share and answer questions. Amy in the Oz
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#24148 08-27-2007 03:38 PM | Joined: Aug 2007 Posts: 83 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2007 Posts: 83 | Thanks for all the good advice. That is a good idea on good note taking....seems like I should remmeber that from school !
Loris and Buzz - I am glad to hear you liked Chris Sullivan, that is who I am seeing on Thursday. Which seems like forever
Bill D - My lump is on the left side, about 4-5 " below my ear, almost even with my chin line.
Deb: Love the Beaufort area. We go to down to our old fishing shack down on the Pamlico River whenever we can. It is on the south side of the river across from Bath....in the middle of no where.
Although there is a lot of information that is scary and confusing, I already feel better knowing this foundation exists.
Bill V
Bill Van Horn-53 ex-smoker, social drinker, Biopsy 8/24, Diagnosed 8/30/07 BOT T2N2-B MX Stage IV. Started treatments 10/1/07. IMRT 35 x, Cisplatin - 3 cycles - completed treatment 11/16/07. CT Scans on 1/15/08 all clear Selective neck dissection 1/28/08. All nodes clear.
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#24149 08-27-2007 04:17 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Bill, since I am an "old" school teacher- the taking notes assignment come natural- but it will help you alot to have written comments about your Doctor appts.to refer back to. As to "scary and confusing" - welcome to the jargon and world of cancer teatment. You will learn how to Zone in on what you need to know [if you take good notes  ], the trick is to not try to read too far ahead- concentrate on what the next few months will bring and understand the treatment proposed so you can ask pertinant questions. Amy in the Ozarks [living in the middle of nowhere and loving it]
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#24150 08-27-2007 04:33 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Bill: Chris Sullivan is the GREATEST! Please tell him that we met on OCF forum...I have asked that he check out the website for himself. And you MUST tell Kay (Dr. S's assistant) that we've "met"...
I believe you'll be MOST satisfied with Dr. S, Dr. Brown, Dr. Chapman and all the staff at WFUBMC. I feel better just knowing that you are being treated by these skilled surgeons!
Keep posting and asking questions...you'll find all the information here that you need!
Lois & Buzz in Troy, NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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