Hi
I was given this site by a friend on the english MFC

Im 54 married to a wonderfull lady Sue 2 children and 1 grandchild expecting our second next year

I was diagnosed in 1998 with SCC of the tongue
Neck disection lymph nodes removed and flap fitted

flap failed and they had to do with the muscle from my chest tunneled into my throat plus Rt to the right

everthing was ok until Feb 2007 when i was diagnosed with Tonsil cancer which i had Rt and Chemo left

Still off work at present trying to eat to get my cals and strenth up

I have been lucky and been offered a Pet Ct scan
we do not have many over here and are only used to detect unknown primary

they are willing to carry one out for me and they have said this would be the first time they have used it for monitoring

what are your expierences of this and have anyone had them for monitoring

My Dr went through a lot about False negatives and positives and what would happen if a possitive showed

Have the weekend to thik about it before contacting the team again

Regards
Dave and Sue

Hi Dave and Sue,

There are many posts here on the bulletin board regarding Pet Scans. A recent one is:

http://www.oralcancerfoundation.org/cgi-bin/ultimatebb.cgi?/ubb/get_topic/f/1/t/001392.html#000000

And, in addition, on the main site, here is another post that might be helpful.

http://www.oralcancerfoundation.org/news/story.asp?newsId=464

My husband just finished RT/Chemo for BOT cancer. His only symptom was swollen lymph nodes so he had the PET done to determine the cancer site.

Even though the PET scan was pretty clear about the source cancer, they still biopsied the site to be 100% certain.

I know that as part of his follow up regime my husband will get regular CT scans (every 3 months) and less frequent but regular PET scans and chest xrays.

It seems like a good idea, what is your reservation about pursuing the scan?

Hi you two :)long time no hear.

Nice to see you are taking advantage of the info from both sides of the pond.Hope you find what you need to make your final decision re PET Scan.Did you manage to get the NHS to cough up or are you having it done privately?

Good luck and Welcome

lots of love Liz

The pet/ct combined id the most affective as I understand. Also read up on the different things that can give false positives. ie inflammation ect. Other than that I have a great deal of faith in the pet scan. My docs are using them to monitor. It is very important to have experienced techs reading them as they can tell differences and understand the uptake numbers better. Good luck.

Thanks All
Hi Liz nice hearing from you again the pics on the MCF brought a ear to both me and Sues eyse

Thanks Mhupe and Lee have checked those sites out

Regards
Dave and Sue

Hey you guys - fancy seeing you here