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#23991 08-07-2007 04:16 AM | Joined: Aug 2007 Posts: 1 Member | OP  Member
Joined: Aug 2007 Posts: 1 | I'm new to this forum just wanted to post my experience with stage III Tonsil cancer...
Dianosised 9/25/2001...(age 52)Radical neck dissection chemo and radiation..Like everyone,I suffered through all the treatments and their side effects..Doing okay so far,still have dry mouth and stiff neck..Can eat well as long as itisn't dry stuff...My largest problem with the treatments was doing chemo and radiation concurrently.Te combined toxicity nearly killed me and was rushed to the hospital an kept in total isolation for 7 days,and it delayed all treatments for over 2 weeks which very very much upset my Rad. Oncologist since he somehow didn't know I was doing both treatments on the same days..Anyway after hospital stay only did radiation there after....Against everyones advice I refused the PEG..lost 60 lbs..nearly 6 years later I gained it all back....One point I would like to make to all is the implanting of a needle port and catheter underneath the skin on the upper part of my chest for chemo treatments...about 5 inches of the caheter broke loose and is now stuck in the two right chambers of my heart...They tried to remove it but could not,now only way to get it out is open heart surgery which I have opted not to do..Long term consequences of leaving it they cannot tell me... | | |
#23992 08-07-2007 09:08 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hi Roger,
Welcome and thanks for sharing your experiences.
How are you feeling now?
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#23993 08-07-2007 09:18 AM | Joined: Jul 2006 Posts: 68 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2006 Posts: 68 | Hello,
Welcome,congrats i am 4yrs so far.I injoy coming here and reading,seeing happiness and sorrow.This forum has helped me alot i hope it does you too.
Friends
Lynn
linda anderson
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#23994 08-07-2007 10:28 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello Rodger I am a little groggy right now but to have a 5" catheter broken off in 2 chambers of your heart and not being told of a course or action with a prognosis is alarming to say the least.  While trying to keep my composure here, I would say you are in grave danger and with that I confess that I am not a doctor. :rolleyes: Petey 
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#23995 08-08-2007 12:32 PM | Joined: Aug 2007 Posts: 2 Member | | Member
Joined: Aug 2007 Posts: 2 | I am so anxious to learn how to comunation with everyone. It is so nice to know I am not the only one with cancer. | | |
#23996 08-08-2007 01:21 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello Msettle
Welcome to the Oral Cancer Foundation Website.
You are not alone and you have found a great place to get compassionate help and support from all the members here.
Most are patients and caregivers.
Click on the links below and learn a little about the website.
After you read these you can write another
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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