Anyone survive mucosal melanoma? Its normally a very aggressive cancer with poor survival rates, but for some reason it has not metastsized to the lymphs in me. I was first diagnosed 2 years ago,at 48, but may well have had the cancer for a year or two before that, as I had several periodontal procedures before the cancer was diagnosed. I have had high fraction radiation and 3 resections of the gum, and a small part of the bottom of my tongue removed, and may be headed for a 4th procedure. Inspite of this I continue to feel well and vital, and not the least bit sick. While normally this type of cancer spreads quickly, so far it has not in me. It is sobering to read the info on the web about this, and my doctor assures me I am not the typical case of this kind cancer. 5 year survial rate are something like 10%. Anyone else in that lucky 10%?

Michael

You seem to be blessed thus far. I've not seen anyone post a message about this sort of cancer, maybe there is someone out there who will come along soon. I hope you stay blessed.

Tim

Michael,

Congratulations on doing so well with such a rare cancer. I have read about this and although I have never seen a patient with it, I have suspected it in a few patients several times. Fortunately, none turned out to be cancer.

Thank you for sharing your story and I wish you continued good health.

Jerry

Thanks. It is considered extremely rare and unusual,
and I figured if there was anyplace to find out more info on this, it would be on this oral cancer web site. My doctor says we're in a realm where there isn't much hard science, and we're relying on instinct and art. There's a weird disconnect between
being diagnosed with such an aggressive cancer for so long, yet continuing to feel so well, wondering if the other shoe is going to suddenly drop.